hello--i have seen 3 neurologist and they have ruled out MS. I do have several brain lesions, but they all say they are hypertension related to sleep apena. Well I have felt really bad. 3 months of constant Internal shaking, feet and leg buzzing, arms feel like they are shaking, but they are not. I was referred to a MS clinic by the last neruo, because I think he wanted to ease my mind. OK well they nurse pract. look at my mri results, and she said I need to get a spinal tap. She says these lesions, may be a problem. What do you think? I am not sure I want to go through a spinal tap. My Chiropractor, friends, and family tell me not to. What do you think? Thank you for your time.
There's a genetic predisposition that allows pathogenic mycoplasma through the blood-brain barrier, for many suffering with symptoms just like yours."
Mycoplasmas grow intracellularly by up-taking cholesterol from host cells. In the process, the cell ruptures and its remains, including a piece of the cell membrane attached to the mycoplasma, is dumped into the bloodstream, causing an autoimmune reaction (Baseman & Tully, 1997). When the immune system attacks the mycoplasma, it also gets “turned on” to attacking the host cell membrane. Autoimmune conditions associated with mycoplasmas include arthritis, Fibromyalgia, myositis, thyroid dysfunction (Hashimoto’s or Grave’s Diseases), adrenal dysfunction, signs and symptoms of Lupus, Multiple Sclerosis, and Lou Gehrig’s Disease (Nicolson, 1998)"
I suggest that you do some serious research to find out whether you need to pursue this route.
The Majority of people that suffer any of the above conditions have Pathogenic Mycoplasma or Lymes Disease infections or co-infections.
If I were in your situation, I would first rule out this before doing anything else, as there's a greater likelihood of such infections.
Should it be the case for you, you need to deal the best in this field!
LLMDs and Pathogenic Mycoplasma specialists are the only doctors that can help you with this. Dr G. Nicolson is the expert in this field (research and treatment)
Please check for related posts here and in the Fibromyalgia Community.
There are a few preliminary tests that may indicate Pathogenic Mycoplasma Infections such as blood volume testing and a 24H Holter
ECG test. The prescribing doctor of those tests must be familiar with the
If you need more info let me know.
Lyme disease, or related coinfections are a possibility, one that most physicians are reluctant to consider. I would have the spinal fluid examined by IGENEX labs. Though Lyme appears to be relatively rare in KY, in all likelyhood that is probably because it is often misdiagnosed as something else.
Hello--I did not think this post went through--I just ran into it after all this time! Thank you for your response--since Sept. I did have lumbar puncture and it was bad--the x ray tec hit an artery and I was in hospital for 3 nights--terrible pain--anyway all results came back normal --no bands no lymes no nothing! I am still have terrible buzzing in feet and legs and chest all day everyday. 5 Neuros and nothing--vitamin d and vitamin b-12 low which I'm treating and that is it! I have muscle twitching in feet arms and legs that can not be seen. All doctors have made me feel like
I'm nuts. I have owned my own business for 17 years and this has really taken a toll on my life. I also have shaky feeling legs but no weakness.
The vibration in my feet are really bad--you can hear the twitching hitting my shoes. Do you have any suggestions for me. I have tried a lot of meds and 2 weeks ago had a EEG and it was normal! Please help me I am losing my mind and my family is stressed from this. Thank you in advance! (sorry words are running together using iPad and keyboard is giving me trouble) Thanks again
In Japan and Europe, the lowest acceptable B12 serum levels are 500pg/mL or 550pg/mL. Vitamin B12 deficiency has been found in cerebrospinal fluid at 550pg/mL. Optimal B12 serum is over 800pg/mL.
Low vitamin B12 levels are associated with increased severity of white matter lesions in the brain which is an effect related to decreased integrity of the myelin sheath. Vitamin B12 deficiency mimics other diseases such as MS, Parkinson's Disease, ALS, and Alzhemier's Disease to name a few conditions.
Magnesium deficiency was the cause of my internal shaking (and over 50 other symptoms!) Magnesium symptoms are far too numerous but two excerpts from an article by Dr. Sidney Baker describes your symptoms:
"Magnesium deficiency can affect virtually every organ system of the body. With regard to skeletal muscle, one may experience twitches, cramps, muscle tension, muscle soreness, including back aches, neck pain, tension headaches and jaw joint (or TMJ) dysfunction."
"Magnesium deficiency symptoms involving the peripheral nervous system include numbness, tingling, and other abnormal sensations, such as zips, zaps and vibratory sensations."
Magnesium is the most important co factor for vitamin D absorption and all the major minerals (calcium, potassium & sodium) are dependent on magnesium being present in order to function. Magnesium deficiency is often misdiagnosed as only 1% of the body's magnesium is stored in the blood.
So sorry to hear about your situation.
Arm yourself with whatever it takes to build your inner strength.
This is the single most important factor in effectively dealing with your condition.
There's a great possibility that you can return to "normal" health.
The suggestions from Red Star are great.
- B12 IV or sublingual drops. METHYLO-COBALAMIN or HYDROXY-COBALAMIN are much superior to Cyano-cobalamin a much cheaper and potentially toxic form of B12 (probably what they prescribed for you).
- D3 emulsified,sublingual drops.
- Magnesium. I use Magnesium Oil which is Magnesium Chloride flakes
with filtered boiled water 50-50. wait till cool and put in a spray bottle,spray my body- except sensitive areas- and massage till absorbed. Leave on for 20-30' and then shower, rinse well and massage body with long handle natural bristle brush. 2-3x weekly
It is the best way to supplement, as there are no digestive issues and the body absorbs what it needs, gradually. The chloride part helps in gastric acid production.
If you are up to it, send me details how all this started, brief medical history,traumatic events, lifestyle, stress levels, fitness, eating habits etc.
hello--thank you for taking your time to review my health info--I am currently being treated by an neuro that really does not know what to do with me. Today I had another Brain and C-Spine MRI with contrast--I will share your post with him--Could you please tell what type of Doctor you are? He will ask me this. Anyway, before June of this Year all was well, except for a little leg weakness. One morning around June 26th (this year) I woke up and that is when this all started. My legs felt shaky and my feet felt like they were sliding apart when I stood on the floor, (like quicksand) also vibrating like they were buzzing. Actually, it went from my feet to my whole body vibrating or buzzing. The sensations in my arms, legs, and chest have not stopped 24/7. This was a slow progression over weeks. I then started having muscle twitching in arms, legs, and feet.You can hear my foot taping on my shoe right now. Along with that I have a motor running feeling going on in my chest, legs, and arms as well. I have not been nice to my body. This started after using my Bi-Pap machine (2 months before) my pressures are high, and the doctors at sleep clinic say that I have the worst he has ever seen. My eating habits are not good, and I have a lot of stress with my business. I am 5'5'' and 320lbs. (I know bad, right), but believe it or not I have been healthy on paper. I just want to get this under control so I can get back to the gym. I have lost weight in the past and can do it again if I focus on it. This has consumed me. Like my other post have indicated, nothing has been found. I am lost. My muscle twitching, leg buzzing, body trembling, is all day everyday. I can not even get to sleep until 5 a.m. because of these feelings going on. No Answers. I have even went to a Psychiatrist which told me that she had no idea why I would come to her. My doctor told to go to see her and I did. I take Vitamins everyday, Mulit, Magnesium, B-Complex, Vitamin B-12 shots every 2 weeks, and Vitamin D caplets (50,000) every two weeks. I have tried Zoloft, Lexapro, Xanax, Ativan, Gabapentin, Klonopin, (spelling, not sure), and others. What ever else the doctors tell me to take. Nothing has given me relief! I have tried Chiropractic care, and that did nothing for me.I have been to 5 neuros, all types of doctors, many test, and lots of blood work! This is all in a six month period! I appreciate your help. I know I need to lose weight and change my diet. My sleeping habits are terrible because of my weight.
I have been told that I am laying on my hands all night and have terrible pain in arms, hands and wrist. What do you think? I'm a real mess huh? Thanks for your time. I really do appreciate any thoughts you can share. I didn't want to start a new year like this. I just want these sensations to end, and will do anything to get a better life! I did have one once....
I've read your posts again.
The more doctors you visit and the more negative findings from various
tests the closer this whole situation gets to being a systemic pathogenic infectious condition. Stress is probably your greatest enemy.
It is running and ruining your entire life. It is also the trigger to this likely
infectious condition that is just causing havoc in your body
Mainly,your CNS has been affected the most. Your Neuro is fishing, hoping that the beta-blocker is going to provide some symptom relief as beta-blockers are prescribed sometimes for tremors. The great downside is that this class of meds comes with a hefty risk of some serious side effects.
You are the one to do the "risk/benefit" analysis.
The bottom line is that you must make some serious decisions in your life
at this point.
1. You need to rule out* or verify the presence of a -difficult to detect-underlying pathogenic infection. You must deal ONLY with expert specialists as per my first post.
* In the event of having ruled out pathogenic infections: Check out the website of this institute:Neurology, Muscular Dystrophy and Neuropathy Institute in Beverly Hills, as it is very informative.
I'm not endorsing this Institute, as I have no direct experience or knowledge
2. Any suggested medical protocol for treatment, must be considered
as only one part of the overall plan to get your health where it should be.
Areas that need to be addressed immediately are stress reduction and emotional re-balancing,weight loss-even in your present physical state- individualized nutritional approach, including comprehensive and balanced supplementation, and heavy metal detoxification.
There's no single remedy or drug- no"silver bullet"- that will make all your issues go away. You have to reclaim your health step by step by implementing a holistic plan of action with a bottom-up perspective.
3. Support. You may find that creating a support structure around your
overall plan, will offer you greater odds of success. Involving family and close friends, associates, a Health Coach, Nutritionist etc. may prove to be as important as your plan itself. Top it up with Hypnotherapy-ongoing sessions dealing with wellness, stress management, weight loss, emotions, rest and sleep, re-programming limiting subconscious beliefs into positive ones etc. will make a big difference!
As far as supplements go for Myelin Sheath support -regarding neurological issues- high quality Omega-3 is recommended 2-3 x daily
1000mg capsules from small cold water fish.
I don't want to flood you with info-I can go on like this forever lol!
Check out my recommendations and if you need any more details
just pm me directly-Anytime.
The nice thing is that you are relatively young, your symptoms have only been showing for a few months and there's a good possibility of recovery if
it's all approached PROPERLY! That's a big word that encompasses seeing the big picture and the minute details.
Not too many people in the health care sector possess such skills.
Stay strong, feel better and make the right choices.
Wishing you well.
You made comment about to a woman 2 years ago about Magnesium and it got me thinking. I'm not sure if you will get this post, but here it goes. 7 weeks ago I went to the doctor for a severe back pain. He immediately gave me a 10 day prednisone(steroid) course starting with 50mg on day one and two, 40mg day three and four,30,20,10. I had a horrible reaction to the prednisone and 3 days after stopping the full dose I was a wreck. It has been six weeks since stopping the medication and I still have an internal shaking that runs low and high. I have swings of heavy shaking.During this time I feel the crap. My head hurts, I feel like passing out, etc. Over the past week I have been cold. My feet are cold and oddly enough my tongue feels cold...it is so weird. I still have high and low shaking. I have changed my diet to a high protein some complex carbs. No refined sugar, caffeine, or alcohol. Prior to the steroid and back pain, I was working out 60 min a day, a healthy mom,and running my own preschool. I since went outside of my medical group and have seen a kinesiologist who has helped my back a ton. He figured out that I had a rotated pelvis caused from walking in my boot for 4 months with broken foot this summer. So my back is better, but I feel I have been left poisoned by the steroids and that my insides are not all right. I have seen neurologist and they ruled out MS. My thyroid is normal as well. I have done countless labs and my doctor has no clue. I have pushed for the the labs as they look at me as a healthy 41 year old women with no prior issues. It's a mystery...I have had the craziest symtoms since taking the steroid, I am so easily fatigued and have no energy.I hate the shaking!!! Me sleep is off too. Anyways, not sure if you will ever get this, but it is worth a shot. Have a wonderful day. Wondering about supplements
Steroid use should not be stopped abruptly but tapered off slowly so you give the adrenal glands time to return to their normal patterns of secretion. If sounds more likely that you are suffering withdrawal side effects due to prolonged decrease in Hypothalamic-Pituitary-Adrenal Axis function.
But to add, prednisone has also been shown to deplete the body of various nutrients as well.
"Prednisone may compromise the immune system and deplete several important nutrients. Supplementation with vitamin C, selenium, magnesium, potassium, vitamin B6 and zinc is considered beneficial with long term use of Prednisone." - Natural News - Prednisone side effects and nutritional deficiencies.
Another medhelp member wrote in more detail about the types of magnesium available...
Thank you so much for taking the time to respond. I did a taper for 10 days.
5pillsday one, 5 pills day two, 4pills day three, 4 pills day four, down to 3, 3, 2,2,1, and finally one pill on day 10. I have been off the steroid since February 10. It is so bizarre. I did not have any of the symptoms prior to taking the steroid. I feel like I have a constant humming/shaking all the time. Sleeping is a joke. Sometimes real heavy and others less. The top of my neck near head aches too. My tongue goes cold off and on. I just want my life back. You are so kind to respond I really appreciate it. I'm going today to see a homeopathic doctor and I am going to bring in your response.
No problem. :) 10 days isn't very long to taper off prednisone. This is an excerpt from the ehow article "How to Taper the Dosage of Prednisone"...
"If your dose is higher than 20 mg per day, the Marshall Protocol recommends reducing your dosage by half every two weeks until you reach a daily dose of 20 mg. At this point, you should slow the weaning process by keeping your morning dose the same and reducing the dose that you take in the afternoon by 2.5 mg each week.
Once your reach an afternoon dose of 0 mg, divide your 10 mg morning dose in half, taking 5 mg in the morning and 5 mg in the afternoon. After one week, begin reducing your afternoon dose by 2.5 mg each week until you reach 5 mg per day.
Divide your 5 mg dose in half. Take half in the morning and half in the afternoon. At this point, begin reducing your afternoon dosage by one-half milligram each week. Repeat this process until you are completely off of prednisone."
I had exactly the same experience after taking predisolone in April and still get the internal vibrations. Have u had any success in treating this?
I cannot take any anti inflammatories as it seems to start it up again.
My problem started on the 7th of October 2014. Buttocks twitching and then tremors start in buttocks ,stomach and legs and feet. Sounds like a motor running in my siomach and sometimes moves on up to chest area. I have been to 5 different Drs. They look at me like I am nuts. None of them have a clue whatto do with me, I am at my wiuts end. @When this starts it is so bad I would call 911 but know that that woukld do no good . They wouldn't know what to do at the Hospital.It has gone solidly for 40 hours without stopping and then like someone turns off a light switch it just stops. SOmetimes for a day and a night , sometimes if I am lucky for 2 days. Then it starts back as Quickly as it stopped,anyone out there having the same thing please respond and anyone who has found anything to stop it or help it please respond. Fran in Dallas
I hope you have found an answer to your mystery. It's never fun knowing in yourself something's not right and then to have some drs think you're crazy. Speaking from personal experience.
One day out of the blue u felt dizzy, fatigue, and general feeling of being ill. I saw numerous drs from neurologist, physical therapist, internist, neurologist, ENT AND endocrinologist. I
Over time my symptoms would change and some would disappear. One of the symptoms has been the internal vibration like my cell phone is constantly going off in my body. So annoying. But it took nine months before I was properly diagnosed with Lyme disease. I had two test that showed I was positive but negative according to CDC guidelines.
I hope you find an answer and more importantly a dr who listens and get down to the root of the problem
Hey you okay? My names nick and I'm 28 years old. I know your post is way to old but I've had similar symptoms for the past year and ms and als was ruled out recently. However my uncle pointed out parkinsons may be what's causing all this. I was just wondering what your diagnosis was. So sorry to bother you.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.