8yrs no answers

[UnsureMS]

My story is long but I am tired of telling it. The most important part of whatever should know is that I just want answers! My sxs are as follows and came up in this order for the most part...a large cyst pops up behind right ear, my left leg begins to tingle and feel like it is asleep, then my left arm and hand do it as well, next my left side of my face....after that I begin to get scared and that is when the dizzy spells came on, I had to get help walking to the restroom to keep from falling down...next my short term memory was affected and I would get these sharp pains in my head, I have had ringing in my ears and pressure in my right ear, I have stomach issues too.

All these are hard to handle but the hardest part is that I feel off more often then not. I can't explain my off feeling but I know I am not myself. I even have had a shaky feeling come over me. This has been going on 8 yrs, and the testing has showed I have an autoimmune disorder, and a spot on the right side of my brain. I have been told it could be autoimmune disorder such as Fibromalagia but that was quickly taken off the table I have been told I could have MS but don't meet criteria fully. I am tired please someone give me suggestions...

What autoimmune disorder does this sound like...does anyone know what type of questions I should be asking??? Help please all suggestions are welcomed...

[UnsureMS]

I did post there...but to be honest I feel that it most likely isn't MS. I am not positive but if is I am under control more often then most people who suffer from MS. I know it is an autoimmune disorder but which one is what had the doctors stumped. The doctor that I have hasn't said ms in a while. I feel he has just decided my b12 levels was to blame and to treat the sxs...and therefore I plan on getting a new doctor. I need some fresh eyes on the situation.

[ConfirmedRachel]

Hi there, sorry to hear all this, very frustrating for you :-(

Can I suggest reposting on the MS forum with any MRI tests/radiologist write ups you may have too? Someone on there may have some helpful tips for you to progress.

Nx