AUTOIMMUNE DISORDERS COMMUNITY
Antiphospholipid Antibody Syndrome & MORE

Antiphospholipid Antibody Syndrome & MORE

Okay:  List of All that has gone wrong since 1991

Lost hearing due to Otisclerosis
2-miscarriages
Hemoraging after 1st born
TIA at 35
Low platelet of 75,000
High Anticardiolipin 4 months after TIA (they never tested for that until then)
Couldn't do MRI until years later because of ear implant (then normal)
2001-Transient areas of hyper-sensitive nerve pain & eventual numbness
4 areas still numb (foot, big toe, hip, etc.) but not a real bother...UNTIL:
10-days ago...Left hand, fore-finger...the tip started to go numb...thought I burned it, numbness moved down hand, to thumb, now middle finger, down the back of hand....
Brain MRI was negative & No it is not Carpal Tunnel...

Please Help Me.  My toe, my foot, my hip, I can live with...I can't live without my fingers and hand...Typing, buttoning, everything...impossible...
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Are you on blood thinners ?
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No blood thinners due to low platelet...

I am on Plaquenil for last 10 years...

Oh, forgot one of the Most Painful things I am dealing with in addition to all the numbness...

Severe pain in BOTH elbow areas & left shoulder...SEVERE Pain...

This is Not the "Growing Old" stuff...It is debilitating, frightening and noone is listening.
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