My son for the past 10 months has had these breakouts that several doctors are calling impetigo. Looks like a staph infection. He has been on 6 different antibiotics and some creams. We still have and now new symptom. red lines form and you can watch and then a bump looking like a pimple will appear and hurt. Then a few days ago he has started coughing up some kind of white stuff that resembles the stuff he gets out of the bumps and he is making gurgling sounds while breathing in his sleep. We were told possibly Bechets disease. I cant get in to a specialist til November, Im afraid of what can happen between then and now. Any answers?
I am so sorry for what you are having to deal with. Not much is worse than watching your child suffer. Unfortunately, there aren't enough rheumies in most areas and 3-6 months seems to be the norm for getting in for a first appointment. Have you a teaching hospital near you? We are near the University of Texas Medical Branch and I have been going there for several years. The good thing about a teaching hospital like UTMB is that you can have all your doctors at one place and they can coordinate your care.
I have a couple of AI issues, myself, and it can be confusing and overwhelming at best. If you absolutely cannot get him in any sooner, I would think coughing up white stuff would warrant an ER visit. If you take him to the ER, let them know about the suspected Bechets and they may have rheumy on staff that can see him, or at least the ER doc can help with the breathing issues until you can see a rheumy.
We just got a diagnosis of Behcets Disease....On my 10 yr old son. along with the diagnosis of Systemic Juvenile Idiopathic Rheumatoid arthritis, his most recent lupus screen tested positive as well. I am curious as to what symptoms your son exhibits. My sons symptoms are Stomach pain, joint pain, rash, and oral mouth sores.Fever's ranging from 101- 104.5 which can last weeks. We currently see a Gastroenterologist out of New Hampshire Hospital for children, An assistant professor out of Dartmouth Hitchcock Rheumatology , We also travel to floating childrens hospital out of Tufts medical center in Boston, Ma. once a month. I know how frustrated you must be....We have walked this path for about 3 years now and just got those three diagnosis yesterday. Doc's plan for treatment is Methotrexate, which is a scary drug as in higher doses its used to treat cancer. The side effects are scary as well. Most Rhuemys have a 3-6 month waiting period...but i would call them back and ask to be put on a cancellation list ( its what i did and instead of waiting the 8 weeks for the appoint there was a cancellation and was able to get him in in 3 weeks. I am curious....have they tried your son on Prednisone? Prednisone seems to put his symptoms into remission, but only while on the steroid. Once the steroid is stopped, symptoms return. I hope you are able to get him in soon, i know how frustrating and overwhelming this can all be, Please keep us posted and let us know how your child is doing.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.