They aren't certain it is lupus, but it's what the doctors seem to think is the most likely, just hoping for any ideas that could help her, since she can't take the strength of steriods due to the side effects, and it gets very painful for her, especially when it's colder.
Has she been diagnosed with lupis? Other autoimmune diseases and come with skin disorders, such as celiac disease. If you google celiac skn condition it will show pictures and she can compare them with her own