After a 4-year struggle with various symptoms but no diagnosis and numerous tests including a muscle biopsy, I have finally been diagnosed with something: Pure Autonomic Neuropathy with chronic painful Demyelinating Motor Neuropathy. Wow. I can see in just the past few weeks a quick progression downward in terms of increased pain, fatigue, low BP, cognitive trouble, and simply an "all over feeling" that's not good. I lay down yesterday for a nap and thought I would die soon (often do). I have heart muscle damage, heart pacemaker but increased rhythm problems, Interstim bladder implant for neurogenic bladder (now using catheter more often), frequent nightly urination, UTI's, and swelling in hands that once were so thin that my rings have guards on them and have been taken up. Can you shed some light on where you think this is going/progressing? Thank you.
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