Autoimmune?

[Cas_Rice]

There must be an answer...

(I'm 36 years old)

I have had 3 types of twitching for going on 3 years now, accompanied by leg tremor when I walk down stairs, mild muscle jerking, a feeling like my eyes are crossing (no way to know if they are as I lost my right eye to cancer in 2007) & brain "fog." I don't know what the clinical term for the twitches are but one is so faint that only I can feel it & it is all the time, in the arches of my feet & ankles. Another one is long term twitching that can last for hours, days or weeks & those can be felt/seen by my husband. The third is quick rippling type of twitches that seem to "run." The rippling kind can be seen/felt by my hubby & when they occur in my feet, cause my toes to curl while it's happening.

About 2 years ago I had a clean MRI and EMG but the nerve conduction showed sensorimotor polyneuropathy. I also had a CPK # of 5,564. The doc felt that number was a misread? He sent me to a neuromuscular spec about 6 months later I had another EMG & nerve conduc but they were normal. She told me to "make peace with my body" & sent me on my way.

My symptoms have progressed to severe pain in my legs with walking more than 2 flights of stairs... the pain lasts for days. Feels like when you do too many squats & pay for it the next day. Everthing else is the same with just an increase in twitching.

I went back to the neuro. & he said he didn't know what more we could do other than repeat the EMG & nerve cond study. I'm more than a little discouraged by his lack of even a hint of what this is.

My medical history includes...

2005 Symphasis Pubis Dysfunction while preggers (rare) (cartilidge in pelvis pulls apart, OUCH!!)

A couple times a year I deal with costochondritis (rare) (cartilidge around sternum becomes    
inflamed & painful.

2008 Gallbladder attack w/o stones or sludge (rare). Hida Scan shows function of 37%.

2008 Miscarriage

2008 Retinal tear in remaining eye (rare at my age)

2008 Central Serous Retinopathy (rare for my sex & age) (unrelated to the tear) in remaining eye

2010 Periodontitis (gum disease) with no prior gingivitis (rare)



Any ideas?

[Cas_Rice]

I was actually wondering if I should see an endo... I think I'm going to give that a try. The neuro did draw 5 viles of blood & sent them off to California (not sure of the lab) to test for all sorts of autoimmune diseases. They all came back negative. Not sure what he tested for. I will look at my records & find out, then compare those with your suggestions & ask an endo what they think.

Thanks for the feedback!

[Lori707]

Regarding your muscles, it might be Fibromyalgia with is rhuematic. My doctor increased my magnesium which helps with the muscles. I'm also on (Neurontin)Gabapentin to help with my parathesea.  

Have you had an RA Factor test? Did you test for anything autoimmue?

Also, do you live in an area that has Lymes? If you answered yes to this then I highly recommend getting the "Western Blot" Lymes test. The doctors like to start with the Essay first and see if thats positive. The Western Blot is more sensitive. Make sure your blood sample is mailed to IggenX Labs in California. Their testing is much more sensative than other labs.

Are you seeing a Rhuematologist or Endocronologist? Have the Endo doctor check you for Hashimoto's Thyroiditis. It is an autoimmune disease of the thyroid.  It can be positive eventhough your thyroid tests are normal.

Be well!

[Cas_Rice]

I'll certainly give all this a try... but you asked about "redness," I didn't mention anything about redness. I don't have any.

I do eat too many processed foods so I'll make a change in my diet & see if this helps.

Thank you!