Baffled with high crp, sed rate and ana results. Where to turn next?
I am looking at what might cause the issues I currently have. I had GI issues (which I have never had in my life.) I am 59 yrs old. It was so severe I had to search out someone an hour away to take a look at me. In teh meantime, I convinced my pcp, a nurse, to order a sed rate, crp, wbc, chem panel. The wbc was elevated (14.7), the sed rate was through the roof (101), the crp was also through the roof (165). When I got to the GI's office, I was starting to feel fine. It went as quickly as it came. (I could not eat for 2 weeks and lost 25lb). I repeated the CRP and sed rate one week later. Also added an ANA. The sed rate was down, but not normal (46). The CRP also was down (2.0) The ANA came back positive - 1:600 (I think that was the titer.) I do have trouble breathing - as if they took all the O2 out of the air that I am breathing. This started well before the GI issue. And it still continues. I am very worn out and have gone from sleeping 6-8 hours per night to 10-12 and still very exhausted. Can anyone point me in some directions to check out or specialists I should try to see? My pcp is not taking this seriously and as I mentioned, I had to call and request an order for these lab tests to begin with. The GI doc wanted the followup for the tests. He also did an urgent colonoscopy and it did not appear too much was going on. There was some irritation in one small area that he attributed to diverticulitis. HOwever, he said that this would not create the very abnormal lab results. (I have never had any abnormal lab results before. I do not take any medications for anything. On occassion I will have an asthma attach but I control that with herbal remedies when I need to.) Any suggestions for me to look into is very appreciated. Thanks
Go see a rheumatologist. The ANA alone points to autoimmune disease. Some people have a positive ANA without having autoimmune disease, but I would definitely see a rheumy. Autoimmune disease is nothing to play with.
I agree with "Chick". A rheumatologist is who you need to see. Especially since you PC is giving you the brush-off. Autoimmune diseases can flare up one day and settle down the next leaving you thinking - was I horribly sick yesterday or was that all in my head. Then hit you again within hours.
Here is an example of some common symptoms associated with lupus, which is one of the many AI diseases out there.
There are 11 criteria for a lupus dx. You must have at least 4 of the 11 to recieve a dx.
1. malar rash over cheeks (butterfly rash) (74%)
2. discoid rash, red raised patches
3. photosensitivity - reaction to sunlight, resulting in skin rash (50%)
4. oral and nose ulcers
5. arthritis (95%)
6. serositis - inflamation of the lining of the lung or heart
7. reanl disorder - excessive protein in urine and/or cellular casts
8. neurologic disorder - seizures, or psychosis
9. anemia or low white blood count or lymphopenia or low platelet count
10. positive ANA
11. positive anti-DNA or anti-Sm, or antiphospholipid antibody or false pos. syphilis test
Other symptoms are:
low vit D levels
shortness of breath
blood in urine
hair falling out (27%)
muscle pain and weakness (90%)
poor circulation in fingers and toes
tingling in extremities
raynauds (where fingers turn white when cold)
intollerance to cold
lymph node swelling (50%)
...to name a few
I know that know one wants to think they may have auto-immune disease, it is a scary diagnosis. Just know that, although there is no cure, a lot of the symptoms can be managed with proper monitoring and medication. But to get that treatment and monitoring, you have robe diagnosed. If you see a rheumatologist, best case you find out you don't have auto-immune disease, if you do, you learn what to expect, what your treatment options are and get the medication you need to manage the disease.
No one is going to tell you that living with AI is easy, it is not. But it is a lot easier with treatment than without. And Lupus is just one AI disease, and not even the most common one. I know this because I have multiple AI diseases and none of them are Lupus. With AI, sometimes you're the windshield, sometimes you're the bug, but on the windshield days you can forget you are AI for a little while. On top of AI disease I also have fibromyalgia and neck and back injuries which are far more debilitating to me on a day to day basis. Sure, I have the occasional flare, which is no fun at all, but for the most part I have lived a pretty normal life with AI.
Please see a rheumatologist so at least you know what you are dealing with.
I see a pulmonary person tomorrow. I do not do meds so that is not an option for me regardless of what is going on. I am leaning at the moment toward Lyme Disease again. I will be demanding a couple of Lyme tests when I see her. I am looking for some doc online to list what can cause these increased labs and then I will make my own decision. THe docs in my area do nto know anything and do nothing except collect their paycheck and make more money for the hospital. They like to fire you because you are asking questions and trying to determine what is going on. And then say it is all in your head regardless of waht the tests indicate. So I have no faith in a doctor's diag. I have faith in my own research based on knowing what can cause these increased labs which is all I am looking for - a laundry list for me to investigate.
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