Autoimmune Disorders Community
Connective Tissue Disorders
Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Connective Tissue Disorders

Are connective tissue disorders autoimmune disorders?  What types are there?  Right now, doc has me diagnosed connective tissue disorder not otherwise specified, though she thinks it's possibly mixed connective tissue disease since I have overlapping things.  Have to go see different specialist farther away from home, hoping to get better diagnosis, referred by my primary care physician to this new rhumatologist.  I really hope the hour drive up there is worth it, though the appointment won't be for another couple months.  Have had joint pain and fatigue for last about 15 years, since I was 18.  For awhile, the docs thought it was all in my head, and then they thought lupus, then fibro, then lupus, and then fibro again.  Now they think it's a connective tissue disorder because of positive ANA, extremely high SED rate of 60, and other positive tests I can't remember everything my head is so swimming but they think i have other organs involved besides the joints.  In meantime, doc is keeping me on Lyrica because it has helped with my joint pain and raynauds syndrome symptoms.  And am taking ibuprofin for the inflammation.  Also got diagnosed with type II diabetes, so doc is focusing on that right now first before the other stuff.  *sigh*
Related Discussions
3 Comments Post a Comment
Blank
Avatar_f_tn
I have MCTD with internal organ damage.  Mainly the esophagus, and a little valve damage in my heart.  Aside from the joint pain, muscle weakness, raynauds, occasional hypertension and headaches I seem to be OK. :)  I visit my doc every 6 months with blood work each time.  I get an echo of my heart each year.  I refuse the esophagus testing because they can't do anything anyway and it is very uncomfortable.  I'm on naproxen (pain, swelling) trental (raynauds) lisinopril and asprin (hypertension) plaquinil (anti something) prilosec, prevacid (esophagus) and Vit B complex. I've been told this is forever and never to go off of any of these. (oh boy oh boy)  Recently I've been told my muscles are deteriorating and I need to go on a steriod.  I'm holding out.  I"m concerned about the side effects and that it would be a life long thing also.  I've read alot about a fruit named "acia" and I'm going to try that. Don't get discouraged, your not alone. I'm out here.
Blank
Avatar_f_tn
Sorry for your problems. Just wanted to say that my dr. also told me that my pain is all in my head. Don't you love it?
Blank
Avatar_f_tn
I am just now researching connective tissue diseases and I don't know alot about it. How were you diagnosed? How do you know you have internal organ damage? What kind of tests? Sorry for so many questions.
Thanks
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Autoimmune Disorders Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Autoimmune Answerers
434278_tn?1324709825
Blank
karajo
Spearsville, LA
1530171_tn?1362547225
Blank
TheLightSeeker
London, ON
1756321_tn?1377771734
Blank
Red_Star
Queensland, Australia
8221281_tn?1397574572
Blank
Pantx
Denton, TX
1340994_tn?1374197577
Blank
Caryopteris
Raleigh, NC
Avatar_f_tn
Blank
nutrinut_bob