Does ITP cause a menstrual cyle to go crazy.

[manderson7727]

My 13 year old daughter was diagnosed 2 years ago. They still have yet to figure out what is causing this. She has been having kind of irregular mentraul cyles she will bleed so heavy filling 2 pads at once for about 2 - 3 months and the about 2 months it is back to  normal. Also when she eats certain types of foods she hurts {Stomach,Intestine area}. The Dr wants a bone marrow done but the Specialist does not. Have they diagnosed her wrong does she have may be Celiacs Disease, but does this cause low blood platelets.
Concerned

[Aimee235]

I’ve been struggling w itp for quite some time now I’m 18 when i first was told i have itp i was sent to hospital cuz i was as low as 2k platelets and i was giving 16 bottles of ivig and predisone and iron since i have iron deficient that was in November it’s Jan now and i have been taking 40mg of dexamethazone on and off for weeks the medication makes my platelets go up to about 100k but they drop within the week as low at 12k and I’m on them again. It seems to be week on dexa then the next week period will happen and mess everything up again. I’m on the pill as well but it doesn’t seem to do much with the bleeding. This is the last time trying w steroids the Dr was mentioning spleen removal

[Lululove55]

I know your post is from a while back now, but I found it interesting that your daughter has stomach aches and Itp. I am 40 and have both as well. I think they may be separate issues but would be interesting if they are related. Here's why they may be seperate: I recently omitted dairy and wheat from my diet and now I have no stomach pain and actually more energy! Did you ever figure out your daughter's stomach problems?

[Lululove55]

Hi,
Last week I took provera (works like Lysteda, take when period is very heavy, and it was on for over a week I am usually 3 days). Provera (tablet, not depro Provera shot) was great, bleeding stopped within a day. My dr said to stop taking when bleeding stops. What he didn't mention is then the bleeding comes back. So what's the point?! It seems like it's gonna be heavy again so I don't understand why delay it? Please explain and is there a better way to handle the bleeding? (I am not having more kids, 40yrs old). Thanks, Laura

[hDavis12]

Hi my name is Heather I've had itp for 4 going on 5 years and yes it can before I knew I had itp my period almost killed me my pallets dropped down to 3 and I was bleeding out through my menstrual I ended going into the hospital just in time and having to receive blood and ivig because it was bad now that I'm aware that I have ITP there are precautions I take you can speak to your daughters doctor about birth control and as well as taking a medication called lysteda to control the bleeding its only to be taken around that time of the month though. If you have any questions feel free to ask I was diagnosed when I was 16 I'm now 20 ive had 16 ivig infusions ive done prednisone whinroe twice retuxamab  

[ewal09]

I have ITP and have had if for 3 1/2 years. I am 22 years old. When i was diagnosed it was because i had been bleeding for almost 2 months it got to the point i couldnt do anything and was very weak, when i went to the hospital my count was 1k they told me that if i had come in the next day i would have died. i am now on the depo provera shot for my menstrul cycle. this shot keeps me from having my period. my cycle was very crazy when i wasnt on this shot. the bone marrow biopsy is a good idea to see if your daughter is producing a adequate amount of platelets. i had one done and i was producing enough. this will also help the dr confirm th blood disorder of ITP. hope this helps

[OnOxyfor10yrs]

thin i meant...lol  not think

[OnOxyfor10yrs]

First off ITP in children is usually an acute situation followed by a virus. This ITP is cureable. Now chronic ITP happens to adults. It is for sure an autoimmune disorder which I am sure you know that the platelets are killed off before maturing thus leading to severe bleeding problems if the platelets are too low. I myslef have it and have very very heavy periods and very painful ones at that. I bruise easily and when I take NSAID like Advil I bruise even easier and platelets drop. The lowest mine have gone is 91,000. This still is not a dangerous number. Going below say 20,000 is in the very serious range. Since your daughter now is a young woman perhaps she has the adult form of ITP. IMO, I would not get a bone marrow biopsy unless her platelets are really low. ITP does not give me symptoms. Be careful to read all medications she is prescribed as some deplete platelets, not just Advil and motrin. Celiac disease I am also familiar with. This type of condition will be due to lack of blood supply from the celiac axis or celiac artery. Basically the gut does not get enough blood supply to digest food. So, people with CD have a "fear of eating" and this happens almost 100% of the time they eat, not here and there and are usually very very think from not eating right. Hope that info helps

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