This started 2 years ago, but I will try my best to be brief.
Symptoms started as bladder pain/urgency, then eye twitching, other small muscle twitches, small red non itchy bumps that appear scattered around upper body, and sometimes its red lines that looked like a 2 inch mark from a red ball point pen, tinnitus, muscle pain at elbows, neck pain, hip pain, bloody nose, low body temps around 97.1 almost always, acne, adrenalin rush feelings, grinding teeth when awake, panic feelings, anxiety, woozy drunken feeling in head, Bowel movements are either constipated or I literally go all day, rapid heart rate some mornings/days, other morning can barely wake up.
I get about 2 "normal" days a month, and the rest of the time I am going through cycles of all the symptoms i just listed. usually symptoms jump around. I don't usually have many at the same time. After multiple intense tests, mri's, brain scans, cyctoscopy, ultrasounds, etc..., they founf I have a positive ANA 1:320 homogenous pattern.
They have tested me for lupus, ms, rheumatoid arthritis, etc... All normal and negative except my thyroid antibodies. Those are very high. around 2000. The endocrinologist found I had both Hashimotos AND graves.
he said it was uncommon to have both, but he'd seen it before. However, its very hard to treat because my blood levels are ALL very normal. TSH, T3, T4, etc... all normal range. Because of that, he doesnt know which way I tend to be swinging...either hypo or hyper, because the half life is keeping my ranges normal. He said there is a possibility I may have a 3rd auto immune disease in there causing my symptoms. Any ideas what this sounds like, or how I can get some relief. Ever heard of people getting both before , with these symptoms.
For starters, hashimoto tyroiditis and siliac usually go together. And with the diarrhea/constipation symptoms going on, it "could be" that or irritable bowel syndrom. Did your dr. think that all the joint and muscle symptoms could be linked to the thyroid problems. Many of your symptoms sound like lupus.
Thanks. I saw a new endocrinologist today, and he said I do not have graves, just hashimotos. Hmmm, so hard to know which doctors opinion to go with, but he's on the staff at UCLA, and that is definitly a good research hospital for peculiar problems. He did not feel my symptoms were from my thyroid, because it shows on paper that its functioning very normal. he also thinks it sounds like lupus, even though I already had a few differnet tests for it. So I am going back to another rheumatologist for another opinion on lupus, or anything else thay can come up with.
Just be aware that lab test in lupus can fluctuate and even be negative and is not an indicator of disease activity. Sun exposure can trigger an immune response, thus if you spend time in the sun just prior to your appointment w/ the rheumy, this will increase your chance of having an elevated ANA. (even if it's a cloudy day)
Keep a daily record of symptoms. Even if you have good and bad days. It also helps to write down your symptoms along w/ which ones are daily and which ones come and go.
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