Elderly man with myasthenia gravis - coping?

[peg1969]

I work in an assisted living facility.  An 85-year-old man has myasthenia gravis and has really gone downhill fast in the last few weeks.  He cannot hold his head up, and can now only eat soft food in small amounts.  He can feed himself if someone holds his head up by pressing their hand on his forehead to raise his head.  We are doing this as he prefers to feed himself when he can and we encourage this.   His vision has deteriorated, as well as his speech (although he still has a wicked sense of humor).  He has started to receive hospice care.  My main question is this: how can we help him enjoy the time he has left?  He has a collar to wear, which he doesn't like and doesn't help him eat because even though his head is propped up, he still can't open his mouth properly.  We have begun feeding him while he is propped up in a hospital bed, with head of bed raised somewhat, because then he can let his head fall back a bit and eat more easily.  Are there some tips on how to manage his eating and drinking so as to make it easier for him?  I also fear that at some point he simply will not be able to breathe - is this a reasonable fear?  

[PlateletGal]

Can you contact his physician and speak with him directly ?