Help!

[Stellabianca]

Hello, I'm writing this because I am at my wits end trying to feel better. Here is my background...I was diagnosed with graves disease in 2002. My drs had a very hard time treating it and ever making me feel better. RAI treatment was suggested to me because they thought I could be better treated as hypo. In 2006 I had RAI and shortly thereafter became hypo. Since then it seems I have been on a steady downward spiral as far as feeling well goes. I have spent the last few years in a state of fatigue that has now caused me to be unable to work or do much of anything. I have been told that Im depressed, have fibromyalgia and/or chronic fatigue syndrome, PCOS, ibs, ic, and metabolic syndrome. My latest labs show that my thyroid levels were very low and so was my vitamin D levels, however even when my tests are "normal", I still feel extremely tired and achy and just generally not well. I recently sought help from an acupuncturist, as I have seen numerous drs from all sorts of backgrounds and specialties in the 5 years this has become worse. He told me after some prodding that he thinks I might have adrenal fatigue. I went home and did a ton of research and to say I am confused would be an understatement. Here is my dilemma with his diagnosis: I am severly fatigued, but once had my cortisol levels checked and it was normal. There was suspicion that it was high because I am shaped like a bowling ball with arms and legs and a slight bump on the back of my neck. I have read some articles that say you can have adrenal fatigue with high cortisol levels, but more say that cortisol eventually becomes low in af progression.
Does anyone have any idea what may be wrong with me?? I am currently taking naturethroid 3 grains a day since my latest labs were low. It has been two weeks and I still do not see any change in my energy levels. Is it suggested to get a full adrenal work up to figure out if that is the problem? Can a person have symptoms of high cortisol and still be extremely fatigued? Can a person stay in the initial high cortisol stage of af for 5 years?
Please help, I have spent so long feeling awful and it has truly wrecked my life. I feel like there is no hope for finding just what is wrong with me and I want to be able to have a life again! Thanks

[thyroidian]

Hi Stella, due to being a graves sufferer myself, and having the surgery twice, i know were you are coming from.

Have you had your Free T3, and Free T4, done and if so please post the blood results with the referance range please.
If you havent had these tested for please get them done and get back to me with the results. and the ranges.

Look forward to hearing from you
Nicola

[ewford]

other symptoms?  joint pain, muscle aches, chronic headaches, eye pain, heart palpitations, neuropathy?