I BEG you to please read this. I am so lost!

[lauren9748]

PLEASE. I beg you to read this health history. I write this in tears of frustration and fear. If you don’t have the time, maybe skip ahead to 2013… I could use all the help and support that I could get. Thank you SO much in advance.

2000 : Root Canal because when I was 9 I fell and chipped my tooth and then it finally died.

2005: Mono

2006-2007: Extreme dizziness, fatigue, brain felt “fuzzy”, chest painTESTS: blood tests, MRI, echocardiogram = NORMAL  

2008: While in India I got an infection on my hand. Went to bed normal, woke up with a “wound” that appeared on my hand about the size of 3 grains of rice.  Pussed and was itchy and deep. Went to the hospital and got treated by a homeopathic doctor and it went away in about 3 days.  No scarring or evidence that it was there or what it even was.

2009-2010: After 6 months of camping in Canada (in one spot while building a house), I came home with extreme digestive pain. Every time I ate my stomach got so bloated I looked pregnant.  Undigested food in stool, mucous in stool, and stomach cramping.  (lasted a little over a year) TESTS: stool test for parasite = NEGATIVE

2012: Crazy foot pain in my right foot. The ball of my foot (on the big toe side) feels bruised to the bone and painful to walk. When I bend my big toe back, it feels sprained.  

October 2013: Pain spread to now being in my left foot too. I thought maybe I had a stress fracture due to lifestyle.  Got an x-ray. One week later I woke up with horrible knee pain and was losing my hair (thinning- lost about 1/4th total hair. Never bald patches).  It was like the pain in my feet started traveling throughout my body.  I also got pain in my fingers, wrists, and in weird “surges” all over my body. As if someone was pushing on a bruise and then easing off.  I could have between 5-20 surges in the course of a minute all over my body, while the knee and feet pain remained CONSTANT. TESTS x-ray = NORMAL / blood tests = low in B vitamins and Iron despite the fact I eat a stellar diet involving mostly all vegetables  + grassfed meats, healthy fats, and minimal grains ( don’t digest them well and I avoid gluten) /WESTERN BLOT LYME= negative/ THYROID = normal / ENDOSCOPY = normal

One month ago (August 2014): The pain in my feet has never gone away for the two solid years that I have had it.  The hair loss seems to have stopped and the other joint pain was under control. About a month ago, I started getting a sore burning throat, swollen glands in neck and ZERO appetite.  These symptoms are the same to this day.  About a week after I got the sore throat, I was camping on the beach and woke up with a wound on my leg the size of a dime. It wasn’t there the day before and was full of pus. Doctor said he didn’t know what it was even though I suggested possibly staph?  After 1.5 weeks it went away.  (It definitely reminded me of the experience I had in India)

Currently as of the past week: besides the continuous foot pain, my knee pain is back, I still have NO appetite, I have a surging dull ache two inches above my belly button to the right. Is this my liver? It is bizarre.  Also, last night I noticed my right armpit was sore and it appears I have a lump/swollen gland/blocked hair follicle? I think since it is painful it is supposed to be a good sign.

I AM SO FRUSTRATED.  My herbalist has been treating me as if I have lyme/ co-infection Bartonella (especially because of the characteristic feet pain). My symptoms have been better since starting the herbal tinctures but I still have symptoms, and as of the past month, new and different symptoms.

My doctor legit looks at me through a lens of crazy.  He thinks I try to read too much up on what I could have and I explain to him that it is my body, and I seem to be the only one committed to figuring this out.  I loved him until I started going through all of this, and now I constantly feel shame and embarrassment.  Thus I just got an appointment for a doctor on Thursday with someone a bit closer to me. I am going to bring him this health history that I wrote out, and hopefully start over.  Part of me is relieved to speak to someone else, yet I’m also exhausted and frustrated and don’t know where to start.

Does anyone know what I could have? Let me warn you that I have had many emotional breakdowns about this.  Throughout the past 4 or 5 years I have cried about the fact that I may have a life threatening illness, such as cancer. Especially as of late, my mind keeps going down that path and I just can’t seem to get out of it. It is literally making me feel worse and more upset.  So please don’t just blurt out “maybe you have cancer”  because I can’t handle it. If it DOESN’t sound like cancer, please tell me., If you think it could be something else, please tell me.  I realize I should probably go to a lyme literate doctor and explore that route, but I feel paralyzed by the fact that they probably don’t take insurance and I can’t afford to pay thousands of dollars JUST TO SEE if I have something. I am willing to pay for treatment.. I’m just so sick of this guessing game.  Thank you for listening!

[TheLightSeeker]

If you have a lack of methylfolate, you cannot process histamine efficiently, which may cause you additional unwanted allergic reactions.
I can give the science behind it another time ,if you want.

Grains could be an issue for you also, so try a total "ban" and see if this helps. It could be because of an enzyme deficiency, low acid or any other reason. Cross reaction with gluten?
Your diet seems very reasonable for your condition.
I guess you don't do dairy (50% of gluten intolerant people have  cross reaction with dairy as well).

You may also want to do on your own, Dr. Coca's Pulse test, to test for any allergies and sensitivity for anything you ingest. It takes a week to complete.
Just do a search. It's public domain (free)

There's a shorter version which works almost as good. If your schedule does not allow for the full test, I can send you the short one. Let me know.

Blessings.
Niko

[lauren9748]

I've been gluten free for a few years now and most of what i eat is grassfed meat and organic vegetables.  Very rarely eat grains because I don't digest them super well.  I am not taking methylfolate.. will look into it.  

I am young but I do think the illnesses I've experienced over the last 10 years are related to something.  I may actually go see Dr. Mark Minncola who is a naturopathic doctor who specializes in muscle testing (for food allergies). He lives about 40 minutes from me so it is worth a try.  Will keep you updated!

[TheLightSeeker]

Have you gone low carb or gluten free for any extended period of time?
If not, try it for a few weeks and see if it makes a difference.
First, I would suggest you start with GF and then continue with GF AND low carb (if you decide to do it).

Best if luck with you new doc. Hope s/he is decent and thorough.
Are you also taking methylfolate? Forgot to ask before.

I just realized you're so young and been through so much.
Listen, try not to worry too much about having cancer, as it does not sound like it and I'm sure, by now they would have looked into it, if there were a cause for suspicion.

For that dull ache above you navel, could it be related to the possible low gastric acid? Maybe the Betaine HCL (OTC) challenge is in order.
If it helps, then you may want to continue for a while on it and see if it helps with this ache.

Blessings.
Niko

[lauren9748]

Thanks for getting back to me! I know, you have answered quite a few posts, and I so appreciate that. :)

The last time I got my blood tested.. about 4/5 months ago, my B vitamins and iron were back to normal. I am still taking supplements! And I take a methyl from of b12.

I had free T3 and free T4 with reverse T3... all came back normal.

I looked at the IGENEX root... I just am not in a position to pay HUNDREDS and hundreds of dollars to just guess and see. My herbalist feels like I have bartonella, so I have been on herbs...  I am totally okay with paying money for treatment but just to play this whole guessing game is so frustrating!  

Cancer has freaked me out because my joints just haven't felt good for over a year... and now with a month of no appetite, swollen glands.. and as of 2 days ago a huge swollen painful lymph node in my armpit.. welll  my paranoid mind gets the best of me.. Not to mention this dull ache near my liver. (2 inches above and to the right of my belly button).

I see my new doctor on Thursday so i'll keep you updated. Thank you again!

[TheLightSeeker]

Hi Lauren.

I've answered a couple of your posts in the past.
Did you get your B complex deficiency corrected?
Did you get the methyl forms of B vitamins?
And by the way did you do any  testing to rule out
MTHFR gene mutation, bartonella (IGeneX Labs), Free T3, Free T4 AND reverse T3 (you need all these 3 tests as I mentioned in the past), PEG test for intestinal permeability, magnesium deficiency (tissue levels-hair analysis).
How are your iron levels now?

Personally, I don't think that cancer fits anywhere, however, I'm not in any position to advise you online on this and in the absence of clinical examination and specific testing, it is impossible to make any determination.

My feeling is that the answers are around, but you need to get tested properly and thoroughly, which could be a real challenge these days, because of costs and conventional medicine limitations!!!

If you are chronically stressed (biological and/or external stress) there;s also a chance that you may have low adrenal function with low thyroid function
as secondary. In this case no matter what your doctor/s treatment is, it will likely fail.
The body to repair and heal, without proper adrenal and thyroid support, is next to impossible. All healing comes from specific electric voltage within the cells.
When the adrenals are weak, they down-regulate thyroid function, for adrenal recovery, so the electric voltage necessary for healing cannot reach required levels.(simplified explanation)

To rule out low adrenal function, an adrenal stress profile test (saliva) is required.
If you need specific info on this let me know.

Best wishes.
Niko