Is this autoimmune? Cancer? TRUE Mystery illness...

[tnmom1974]

Hello. I am looking for some help with my daughter. She has seen a ENT, Allergist, Urologist, Cardiologist & most recently an Infectious disease doctor. No one can figure out what is wrong w/ my 6 yr old.
There is a long medical history of repeated infections. Shots of antibiotics, then 10 days worth clear it up then 1-2 weeks later it is all back. High fever ( 104+) , blood in urine (lab work shows no UTI or Kidney infection) ear infection (no pain) sinus infections (again, no pain & no cold before) Her WBC is anywhere from 15,000-23,000 during these episodes. She can literally wake up in the morning w/ no illness to having 104+ fever...take her to the doctor & I am told she has all these issues.... how is that possible & what is the underlined cause for this?? Her red blood cells are all in good range...so they know it can not be Leukemia. She has been tested for Lupus, Cystic Fibrosis, no allergies. She has an abnormality on the outside of her rt kidney (has nothing to do w/the function). I am looking for help. Please. As of today she is 9 days on the highest dose of the strongest antibiotic her DR can prescribe, fever for 10 days. I am told it is not viral. Her WBC went from 15,000 to 5,000 as of this morning...but now her ears are back to infected. He can not explain how that happened. I'm tired of hearing she's a zebra...please... anyone hear of anything like this?

[tnmom1974]

Thanks Tarter! I will look into that. I have a 3 yr old son who is very healthy, but something might be affecting her differently.
  Why is it so hard to find a doctor who can help? Or figure it out? Always treating the symptoms.... never getting answers. You'd think after all these doctors you'd find one who would try...out of curiosity, a challenge to get this solved.

[tarter]

Could be something toxic in your home?

My symtoms and low WBC match along with normal bloods.
Further testing showed I had high levels of mangernese, lead, mercury due to faulty boiler in house. ear problems and sore sinus with high temp were all periodic when i was being exposed. Have a heavy metal test done to be sure.

Hope you get some anwers soon carole

[SickMomma_PDX]

No answers, but trying to give you a bump.

I've got a little girl almost your daughter's age, and I'm grateful every day that *I* am the one who's sick and not her. I hope you get some answers soon and that she's feeling better, and stays better, asap!

Good luck!