Lupus, MS, Behcet's??? Can anyone help me.

[aleyce]

My PCP and Rheumatologist believe I have an autoimmun disease because Prednisone is the only thing that keeps my symptoms half way controlled.  However, I cannot seem to get a diagnosis.  I am extremely anemic, I have had onesided headaches for years on the right side only.  Which started as a headache, right ear ache, a few years a go I had recurring staph infections that are now gone, I have severe skin flare ups on my hands, my hands itch  and turn red and feel hot a lot.  I get these strange flare ups on my arms and back that bleed out of no where....the entire right side of my body goes numb a lot, clumsy right hand, weak right knee, purple marks that come and go on my knuckles and ankles, right side sore throat, tongue swelling, severly fatigued a lot...pinkys on both hands go numb, head, feels numb, cold sensation on right shoulder.....EMG normal except for carpel tunnel, MRI results did not show anything on brain but did show bulging disks in C-spine, the following is one of my blood test results.....
I almost always test low iron on blood test. I was given a strong iron supplement then it was too high =336 then back down, etc. Also, I am wondering what some of my blood test mean for example - MCV low - 71 (80-100), MCH Low 23.6 - RDW high 28 - Neuthrophlis 28 low (40-74) Lymphocytes 55 high (19-48%). My question is what are the possible issues and what kind of doctor should I be seeing? Also the only thing so far that makes all this go away is predisone. Arthritis profile normal....white blood cells are elevated on almost every test.   They have gone from thinking it was lupus, possible MS - these two are ruled out now my doctor thinks it is Behcets but does not seem sure.  I am wondering if I should also see a Nuerologist and a Dermotologist?  If anyone can look at this and give me direction I would appreciate.

[merrilea]

I had symptoms similar to yours for years:  debilitating one-sided migraines, pain and numbness in my neck, spine, right arm and hand, over-all joint pain, mysterious burning skin sores.  I also had L-Hermittes sign (electric shocks going down, then up my arm), which is a sign of MS.  I have seen many doctors and have many different diagnoses, but in the end everything points to chronic inflammatory disease and the meds I took to try to control the pain.

Everything changed when I started the clinical study, Marshall Protocol, in June 2007.  My migraines literally disappeared and a cyst they found in my neck joint has healed.  I have another year to go, and am feeling increasingly better and stronger than ever before.  And I take no pain meds now.  I highly recommend that you visit www.marshallprotocol.com and www.curemyth1.com.  They can help you wean off Prednisone while you are on the treatment.  This treatment works for me and many other chronically ill patients world-wide, and looks to be the standard cure for chronic disease one day.  I hope you will check it out.  Let me know if I can help.

Well wishes,
Merrilea

[aleyce]

Thanks for the info, I will check into that.

[want2bike]

Hal Huggins has a book named "Solving the MS Mystery".  Often these neurological problems we are seeing are related to the dental work we have had done.  You might want to read his book and it can explain what he has found in his 30 years of treating people with MS and other neurological diseases.  I think the diet is a key to returning to good health and the Paleolithic diet seems to show the most success at helping people with neurological diseases.  You might want to google this along with mercury posioning and you could get some answers as to your problems.