Myasthenia Gravis?.... Or something else?

[Gen6en]

Hi all,

I just wanted some opinions from people that suffer with MG or people that suffer with something that has the same symptoms that I have...

My doctor suspects I have MG and has done blood tests (which we are waiting for the results) referred me to a neurologist for an MRI (which I am waiting for an appointment)

I am a 30 year old female and for the past 4-5 months I have had:

* double vision (that can last 20mins-6 hours)
* ringing in ears
* lightheaded feeling for days on end
* severe tiredness
* episodes of heaviness in arms (i can't move them) that triggers nausea and feeling like I may faint (this lasts 30 mins each time)
* muscle twitching in eye that can last hours
* constant pressure feeling in head

I have read up on MG and I just don't think it is what i am suffering from...

I just wondered if there was anyone else out there that suffers with these symptoms and knows what it could be?

[Garth L Nicolson, PhD]

Until your blood tests come back, it is difficult to get a firm picture of your condition.  Most of your symptoms are non-descriptive, meaning that they can't be used for a differential diagnosis.  The lab results will help.

Often in nonspecific neuropathy and muscle weakness along with thyroid problems and eye problems chronic infections are found that are neurotrophic (nerve cell attracted).  You should probably be checked for Mycoplasma and other infections that can invade nerves and glands like the thyroid glan.

Prof. Garth Nicolson

[iris986]

I too am awaiting for blood test and appt with neurologist.

My symptoms are:

double vision
droopy eyes
muscle weakness in hips after walking too much or climbing stairs
muscle weakness after 30 to 45 minutes of crocheting
ringing in ears
muscle pain in legs, arms, feet, neck and back
sacral arthritis
pain and swelling in fingers and knuckles
muscles stiffen up in lower legs
muscle spasms in toes, feet, legs,arms, back, ribs and chest
I have had pleurisy numerous times.
Swelling of neck
Nerve pain in knees
Hypothyroidism and thyroid Cancer in March of 2009

Have you been checked for Lupus or Undifferentiated connective tissue disease?
Has your B-12 and Vitamin D levels been checked?

I am currently on Methyl/Prednilisone which keeps my symptoms to tolerable levels. I am also on B-12 shots and Vitamin D.

I have also tried Methotrexate and Lyrica but had a reaction to it.

I am sorry you are having a rough time. Hope they figure it out soon.

[Kelly1936]

I have had Myasthenia Gravis since I was 17 I am now 60.I was given a Tensilon Test which proved positive. It took them 2yrs before I was diagnosed. I had all symptoms you are experiencing, I would fall down in a heap, legs weak, double vision, droopy eyelids.Could not swallow fluid ran down my nose.Couldnt smile.Had  Thymoma 19yrs.I take Mestinon @ azathioprine. It is Hereditary, my second son developed it when he was 11yrs. He has had various Thymectomys. Copes with it daily.Hope this helps