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Mysterious episodes of redness on knuckles and fingers- benign or not?

For the last few years I've had something that appears to be a mild Raynaud's syndrome. Once in a while, 1-2 fingers or toes will get white and very numb (but not much more than that- they never get blue). With my fingers, it's often happened when driving in cold weather, pressing my fingers to the top of the cold steering wheel. I think it tends to happen more often when I'm stressed, but I'm not sure.

When I started considering whether I might have Raynaud's, I started paying attention to other things. For instance: often, my knuckles and fingers suddenly become red. It has happened for a long time - years, probably - but I've always dismissed it, since it's painless and quickly goes away (after around 10-30 minutes). Here's a more complete description:
- The rash is just red; it's a rush of blood
- My fingers feel warm (like the feeling in your cheeks when you blush)
- Painless, itchless
- Smooth, not bumpy/scaly
- It appears in a somewhat strange rash-like pattern - kind of splotchy on the edges. (But the splotches are small).
- It's always stronger on my right hand than my left hand
- In my right hand, the rash covers most of the base knuckles of each finger; the space above those knuckles is somewhat red; the middle knuckles of each finger are much less red; and the upper knuckles, as well as the space between them and the fingernails, are more red.
- In my left hand, it's just on my index finger (in a similar pattern), or not present at all
- I can tell that an episode of redness has an ending point. When it ends, the splotchy pattern turns into a general, non-localized redness, and then it slowly fades into a normal color. It's as if the blood gets stopped up in some capillaries, and when the episode ends, the capillaries allow the blood through & it disperses and circulates normally. (That's just my guess.)
- I can't tell what triggers it.  A couple times, it was an hour or two after a hot shower. Once, it was after I was washing dishes with hot water. Sometimes it seems random- no hot/cold temperatures involved. Once it was while I was playing the violin (and that time, it didn't appear on my left hand at all).

When I tried to search Google for what might be happening, here's what I found:
- It's probably "erythematous". (However, erythema seems to be raised or scaly sometimes... this is pretty 2-dimensional.)
- It resembles pictures of "Gottron's sign," which is apparently a symptom of dermatomyositis. It's like this picture:
http://medlibes.com/uploads/Screen%20shot%202010-07-28%20at%2010.29.52%20PM.png
However, it's a lot more red between the base and middle knuckles of each finger. Also, it's not symmetrical between the right and left hands.
- It also somewhat resembles pictures of erythema on knuckles due to lupus. However, I highly doubt I have lupus; a few days ago I tried sitting in the sun for about half an hour, and nothing happened. I don't get unexplained fevers. I do get chills sometimes - I often wear sweaters and coats indoors (and sometimes warm hats) - but usually it's cold outside. I don't look in the mirror very often and when I do, I don't pay attention to my face. Lately, I've been paying attention, and I do not have the butterfly rash. (Once, after a shower, my cheeks and nose were red in the butterfly pattern; it faded after 5-10 minutes.) I do periodically get sores in my mouth. Six months ago, my hair cutter said I had unusual amounts of hair falling out; but it doesn't seem very unusual to me, and it definitely isn't noticeable on my head. I do get tired/fatigued sometimes, but I never know if it's because I stayed up late, didn't exercise, didn't eat enough, or ate too many carbs. (These are all somewhat common for various reasons.) Anyway, I'm female and in my mid-twenties, which seems to be the case for many people with lupus. But again, I doubt that I have it.
- Some other conditions sounded like they produce similar rashes, like rheumatoid arthritis. However, they all involve joint pain. My fingers do NOT hurt at all. I suppose other joints sometimes hurt a bit, but I can usually name another cause (e.g. sore ankles after I've gone on a hike after not exercising; sore knees, but I like to run and jump around, skip stairs, etc; sore right wrist, but it feels like a flare-up of the tendinitis I had 10 years ago).

Anyway, now that I've started trying to figure this out, it would be great to find out whether this is actually cause for concern, or whether it's just a random benign reaction, as I've always assumed. Do I need to see a doctor about it?   It doesn't bug me at all. If it never did anything different for the rest of my life, I would be perfectly happy.

However I'm curious about why it lasts for just 20-30 minutes. I haven't found anything on the Internet that mentions that aspect. And I really doubt that I have lupus, but it's a bit scary that the 'rash' corresponds to descriptions/pictures of it.

If you've read all the way to the end of this... thanks!! I hope someone knows something that can shed light on it.
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Avatar universal
Just to let anybody who may be reading this know, I myself am getting this checked out by doctors. Had blood work and urinalysis done and will schedule an appointment with a rheumatologist. The doctor at my appointment today wants me to see both a dermatologist and rheumatologist to see what direction we should head in with this. I'll schedule an appointment with the rheumatologist first since I think this is an issue of rheumatology.

So far I haven't gotten my full test results from the blood sample. It came back, though, that I had low levels of vitamin D. Anyway, I'll update this with anything else they find. I had blood drawn more than a week ago, at the ER less than a week ago, and today.
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2 Comments
Did you ever get an answer to this?  I have the same thing, and also have low Vit. D.  Just curious.  Thanks.
Hi, queenpurple64

I'm not sure if I'll have to log in upon posting this, but I am Control_Panel. I decided I would stop seeing doctors. Conventional medicine aims to treat/mask symptoms rather than heal since there's no money in healing. For example, doctors who practice conventional medicine have been trained to underestimate the importance of nutrition, and it's simply an "elective" in their schooling. Did you know that people are reversing, and have been reversing, their cancer by radically changing their lifestyle (raw food diet/no smoking, drinking, or drugs/reduced stress)? In the case of multiple sclerosis, there is a testimony of a person going from hardly being able to walk to riding a bike with ease within a short period of time upon leaving the United States, which is a country full of nothing but fear, hatred, division, jealousy, envy, stress, and overall toxicity (physical and mental). In other words, once you leave an environment like that and have the opportunity to breathe, you can heal. The Americans in particular are so stressed to the point where they're doing all the unhealthy things imaginable to numb their emotional pain, all the while getting little exercise because physical activity is no longer something that's embedded in this lifestyle. Then after a number of years living that way, your immune system is both overloaded and suppressed. Then before you know it, there is a lump/bump somewhere on your body or another symptom that is a manifestation of something going wrong in it. Then you go to a doctor, who gives you more poison (medication), which further suppresses the immune system and increases your risk of developing other disease. No pharmaceutical drug is good for you, and the reason you may have a particular ailment is NOT that you're not treating it using a pharmaceutical drug. The medical industry is one gigantic illusion and is an enemy of humanity, just like the educational system...just like the judicial system. Don't let anybody fool you.

As far as the red fingers/knuckles is concerned, this appears to be nothing more than Raynaud's syndrome. The fact that it may be spreading to your knuckles/hand in general doesn't mean it's not, as this phenomenon can affect the entire hand. It can affect people in different ways. Even if it's not Raynaud's in particular, it's something similar in that a vasospasm is resulting in this. What's causing the blood vessels to contract in the first place is unknown, but something is indeed causing it. Restoring my vitamin D levels "appears" to have helped but not eliminated these episodes. I plan on leaving not only the United States but the United States but the entire Western world this year, as I cannot handle it anymore. Everybody is stressed to the max but doesn't realize it since this is all they're used to. They think this is the way life "is." I'll update you if I get the chance to.
Avatar universal
This appears to be thoracic outlet syndrome (the arterial variety, which has been giving you Raynaud's-like symptoms). This syndrome, including arterial thoracic outlet syndrome, aren't dangerous unless your blood is prone to clotting (so you should be safe). You can read about it online, but it could be caused by sitting in certain positions for extended periods of time every day, such as by leaning against the arm of a couch while on your laptop. Most cases are the neurogenic, but this appears to be arterial in that the fingers get cold, followed by blood rushing to them and causing them to be red. The redness can reach as high as the knuckles and even the entire hand. It doesn't have to be symmetrical since one arm may have endured more strain than the other or that each arm experienced strain, but different forms. Yes, the redness on the knuckles may resemble that which is due to lupus, but things even like allergic reactions can cause this. Look up exercises for thoracic outlet syndrome online, and this problem should go away within months, or weeks if it's not as bad a case.
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2 Comments
Might also be dermatographia.
With respect to my comment on arterial thoracic outlet syndrome, I happened to have a CT scan (with dye) on my chest at the ER. It came back normal, so apparently it's not TOS.
Avatar universal
Does anyone have any updates or diagnosises to discuss as of now? I'm having this exact same problem and really want to know what it is!!!! Any info would be helpful, please!
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Avatar universal
Did you ever find out what this was? You sound like me!
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Avatar universal
Just wondering what you have found out! You are describing me!
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434278 tn?1324706225
I think it is probably primary raynauds or possibly dermatomyositis.

The fact that you are prone to cold points me more to raynauds.  There are two kinds, primary and secondary.  The secondary comes w/ other autoimmune diseases.  So I think yours is primary.
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Avatar universal
Hello, to be honest I would still go get checked at a doctor just in case. It could be nothing, but it could be something serious going on with in your body. It could have to do with your blood flow. So while its not bothersome, you should just make sure. Who knows you may catch something early on.

Also, I am just starting to look into lupus myself. While it would be scary to have a dxs of lupus, which I am not sure you have. It would also be a great thing to catch it early on. Try not to stress so much, but do go get checked just in case. Praying for you

Kimberly
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