Autoimmune Disorders Community
Need Advice re: Autoimmune Disease
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Need Advice re: Autoimmune Disease


I posted this earlier but want to make sure the Dr sees this.....so I am posting it again

Hello...I have been ill for 12years now...and have had sooo many test done.  I am dealing with quite alot right now....I have fibromyalgia, DDD, migraines, pituitary brain tumor and a brain aneurysm.  And have some other things going on...with all the test I have had the test for autoimmune which it is poitive then negative...been to many specialist who just tell me I have an autoimmune disease....I loss my hair...I have pain...joints hurt...muscles hurt...I am at present on no meds specific for that but my question is....since I have an autoimmune disease what should I be taking?  I am alot of supplements but is there one thing that is better or worse....help would be so appreciated...I am a 49 year old lady...had to have a hysterectomy when I was 28years due to have cyst on my ovaries which when they popped blew my ovaries a part.  after that surgery was healthy until 12years ago when I started showing all the signs of lupus....even my neurosurgeon says my anuerysm is typical in people with lupus....any help would be appreciated.
Thank you for your time.

JM
351246_tn?1379685732
Hi!
I know you are apprehensive and rightly so. ANA can be positive without a cause or a positive ANA can turn negative during course of an autoimmune disease. Hence one cannot depend on ANA alone for diagnosis.
For diagnosis of lupus you need to have any four of the following criteria: serositis (pleurisy or pericardiatis, since you had bronchial infection, ask your doctor to check for pleurisy or inflammation of lining of lung), mouth ulcer, low WBC or leucopenia/anemia (hemolytic)/thrombocytopenia/lymphopenia, arthritis, kidney involvement, high ANA, finding of Smith Antibody (Anti-Smith)/ dsDNA/ antiphospholipid antibodies (anticardiolipin immunoglobulin G [IgG] or immunoglobulin M [IgM] or lupus anticoagulant), neurological features like seizures and psychosis, discoid rash and malar rash.
If you have any four of these criteria then you have lupus even if you have a negative ANA now.
Your symptoms—hair fall and joint and muscle ache can also be due to hypothyroidism, menopause or pre-menopause, severe anemia, and PCOD. Please discuss these possibilities with your treating doctor. Take care!
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