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Numbness, tingling, low b12, high RNP, so confused!

by rjoc, Aug 12, 2009 08:43AM
Since March I have had several upsetting symptoms and have had countless tests performed. I am 30, otherwise good health, except for PCOS. My second child was born in July 2008. My right toe went numb first, a few days later, I started experiencing numbness and tingling wherever pressure was applied (back of legs when sitting, forearm when leaning on it, etc.) I was also very tired and fatigued. I had an MRI of my brain, neck and spine and a CT of my brain as well. All are normal, except i have two bone spurts in my neck which are not touching the cord. I've had nerve conduction tests and they are normal. My blood work showed a lower b12 level of 240. After a month of oral b12 that number only raised to 249, so I received an injection last Wed. My blood work also indicated a high RNP antibody level, and he believed it was a fluke and I should wait six months to re-check it. Of course, I'm very nervous about that. I also went to physical therapy for six weeks to strengthen my neck. The neuro also thinks it's a lot of it is carpal tunnel type stuff because it often (but not always) happens when I sit a certain way, hold my baby and so on. My equilibrium feels a little off sometimes, especially in the dark. I also felt like I wasn't thinking as quickly. My hair is thinning pretty badly too. Some of these things seem to be a little better since last week's injection, but certainly not gone. I think I've listed all my symptoms. I appreciate any advice and insight.
Member Comments (1)

by kmil1999, Aug 12, 2009 11:13AM
To: rjoc
  I think I would get a second oppinion from a neurologist.  The normal nerve conduction tests would rule carpal tunnel syndrome.  

  A rheumotlogist would be a good start.  Have you had a full workup?  (ie: ANA and other antibodies?)  Anti-RNP are detectable in SLE patients, Mixed connective tissue disorder and Raynaud phenomenon.  

  Hope you get plenty of ideas!
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