I am a 36 year old female, thin and usually healthy. For several years now, I have been suffering with drenching night sweats off and on. All viral and parasite tests have been negative. In 2008, I was diagnosed with neutropenia, although my doctor can find no cause. This past February, I began experiencing blurry vision and pain under my tongue. The pain under my tongue spread throughout my mouth. The pain was terrible, but my mouth looked normal. I also began to experience pain in my lower right flank along with horrible nausea. I had a CT and an MRI, but they were normal. I recently had an ANA test that turned out 1:160 Positive. Could this be Sjogren's?
I have Sjogren's, but aside from the night sweats, I don't have the symptoms you describe. I have dry mouth, dry eyes, dry nose, achy joints and hamster jowls, but not the painful mouth or blurry vision. There is a simple blood test for Sjogren's. Have your rheumatologist order the test.
I recommend the blood test. I had the lip biopsy, but it came back inconclusive. They take a little piece of salivary gland from your lip for the biopsy. It's kind of painful and they often don't get enough of the actual salivary gland to make a diagnosis.
I was told at one point that I might have sjogrens but over time those symptoms settled. I had a dry mouth, very dry eyes, 1:80 ANA. Over the past one year my symptoms turned more towards the digestive tract hence was labelled as IBS although another doc suggested Crohn's. Over the past six months, after many milder flares which settled with medication we could see them coming closer and with increased severity. In June meds didn't help and a repeat colonoscopy (balloon enteroscopy) confirmed Chron's colitis.
Moral of the story, some of these illnesses take time to evolve and settle. Maybe it will change course again...only time will tell, until then I'll just try to find a balance between activity, rest, exercise/meditation not forgetting healthy food. My best wishes to you so that you have the strength to cope with your situation!
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