Aa
Prickly skin sensations
I have Hashimoto's and recently diagnosed with Sjogren's. I take Plaquenil, Evoxac, Levothyroxine, and Cytomel.
I have developed an new symptom last night and I am wondering if it could be a side effect of one of my medications or if I should be concerned. For the two days prior, I had been experiencing what I believe is called dynamic tactile allodynia (?) above and below the inside of my right elbow. I have had this off and on for many years with no apparent cause. This disappeared yesterday afternoon, but last night I began to get sharp prickly pain/ sensation in this area. Throughout the night it progressed to my whole right arm and then right leg. Then the left. And now I feel it all over my body including shoulders, neck, ankles, face and even outside and in my ear. At rimes it feels like small ants biting or pokey bristles. The sensation seems somewhat transient and temporary burst here and there. It is bothersome and sometimes the pricking is sharp but not debilitating in any way but certainly affected my ability to sleep. I have tried ibuprofen thinking that some swelling might be affecting nerves but it does not seem to help. It is quite distracting and irritating. What could this be?
I have developed an new symptom last night and I am wondering if it could be a side effect of one of my medications or if I should be concerned. For the two days prior, I had been experiencing what I believe is called dynamic tactile allodynia (?) above and below the inside of my right elbow. I have had this off and on for many years with no apparent cause. This disappeared yesterday afternoon, but last night I began to get sharp prickly pain/ sensation in this area. Throughout the night it progressed to my whole right arm and then right leg. Then the left. And now I feel it all over my body including shoulders, neck, ankles, face and even outside and in my ear. At rimes it feels like small ants biting or pokey bristles. The sensation seems somewhat transient and temporary burst here and there. It is bothersome and sometimes the pricking is sharp but not debilitating in any way but certainly affected my ability to sleep. I have tried ibuprofen thinking that some swelling might be affecting nerves but it does not seem to help. It is quite distracting and irritating. What could this be?
TSH is unfortunately not very reliable when testing for thyroid function.
It's the established protocol and it just does not always give an accurate picture.
It only shows the serum levels of the Thyroid stimulating hormone.
There are numerous possibilities of low thyroid function, when TSH levels show normal.
However, your TSH level at 0.47 is actually below the standard range (0.5-5.0) and WELL below the functional range (1.8 – 3.0).
And your Endo finds this normal. Something doesn't make sense.
Perhaps the TSH at .47 is a typo?
In your case, should you also have an underlying infectious condition such as a pathogenic mycoplasma infection along with other co-infections-which would explain further the Sjögren's dx, then you might have a real challenge, as Hashimotos, Sjögren's and possible underlying pathogenic mycoplasma and company are NOT well understood by doctors and naturally not treated efficiently. leaving the you the patient suffering and in limbo!
Hashimotos sometimes also may present symptoms of hyperthyroidism and other irregularities,and it might be in your own best interest to find somebody who understands immunology very well and is up with alternative treatments, in order to get all this under control.
Your Endo and the Rheumie, to my opinion are "stuck" with their ineffective protocols, so don't put your hopes up too high with them.
Please post again or pm me about what you think regarding my observations.
Love & Light
Niko
It's the established protocol and it just does not always give an accurate picture.
It only shows the serum levels of the Thyroid stimulating hormone.
There are numerous possibilities of low thyroid function, when TSH levels show normal.
However, your TSH level at 0.47 is actually below the standard range (0.5-5.0) and WELL below the functional range (1.8 – 3.0).
And your Endo finds this normal. Something doesn't make sense.
Perhaps the TSH at .47 is a typo?
In your case, should you also have an underlying infectious condition such as a pathogenic mycoplasma infection along with other co-infections-which would explain further the Sjögren's dx, then you might have a real challenge, as Hashimotos, Sjögren's and possible underlying pathogenic mycoplasma and company are NOT well understood by doctors and naturally not treated efficiently. leaving the you the patient suffering and in limbo!
Hashimotos sometimes also may present symptoms of hyperthyroidism and other irregularities,and it might be in your own best interest to find somebody who understands immunology very well and is up with alternative treatments, in order to get all this under control.
Your Endo and the Rheumie, to my opinion are "stuck" with their ineffective protocols, so don't put your hopes up too high with them.
Please post again or pm me about what you think regarding my observations.
Love & Light
Niko
I do have a thyroid panel run every 6 weeks. I was just checked two weeks ago and my TSH was .47. I cannot remember the other numbers but my Endocrinologist felt everything looked good. She is the one who actually referred me to the Rhuematologist because of my autoimmune lab results. I will check out the Basal Temp test. I am usually 97.9 but last week bounced between that and 99.4 for no apparent cause. For the past year or so I do occasionall get unexplained low fevers for a few days to a week.
Hi overit4now.
Hashi's could be responsible for both Sjögren's syndrome and your suspected dynamic tactile allodynia, as your Hashimoto's treatment may not have been as efficient for optimum thyroid function.
This possibility is more common than not, and if prolonged, it can lead to organ and skin involvement, associated with lupus and other serious conditions.
To find out how efficient your Hashimoto's treatment , since lab testing for hypo is notoriously complicated and often not reflecting accurately the thyroid function -only the hormone serum levels and not the cellular hormone activity or rather lack of or diminished- you may do Dr. Barnes basal temperature test. Please search this and should you have any questions or if you test positive for low thyroid, let me know.
This is not intended as a substitute for medical advice.
Best Wishes.
Love & Light
Niko
Hashi's could be responsible for both Sjögren's syndrome and your suspected dynamic tactile allodynia, as your Hashimoto's treatment may not have been as efficient for optimum thyroid function.
This possibility is more common than not, and if prolonged, it can lead to organ and skin involvement, associated with lupus and other serious conditions.
To find out how efficient your Hashimoto's treatment , since lab testing for hypo is notoriously complicated and often not reflecting accurately the thyroid function -only the hormone serum levels and not the cellular hormone activity or rather lack of or diminished- you may do Dr. Barnes basal temperature test. Please search this and should you have any questions or if you test positive for low thyroid, let me know.
This is not intended as a substitute for medical advice.
Best Wishes.
Love & Light
Niko
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