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Problems with teeth, anyone?
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Problems with teeth, anyone?

Does anyone else with autoimmune problems have severe tooth decay so bad teeth need to come out?  My teeth have been having such severe decay that they need to come out.  I take really good care of my teeth because I have had such problems but despite brushing, flossing, listerine daily, by the time of my next dental visit there is another tooth rotted.  Yesterday there were 2- spent all day in dentist trying to save a tooth but now up in middle of night and hurts so much worse need to go back and just have it pulled.  About me: I have a lot of autoimmune problems, Drs think more than lupus, maybe mixed connective tissue disorder?  I have chronic sinus infections and lots of nerve problems-that cause chronic pain and I think called myclonic jerks.  Drs also think my problems probably stem from underlying mitochondrial genetic disorder.
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Avatar_f_tn
I, too have a lot of trouble with my teeth - and have several auto immune diseases.  I NEVER had any trouble with my teeth when I was a kid - I was 20 or 21 before I even had my first cavity!

Have you been checked for or does your doctor think you may also have Sjogren's?  One o fth esymptoms of that is a very dry mouth (as well as eyes and other mucous membranes) and of course a dry mouth is more apt to breed germs that can cause tooth decay.

I've not tried it, but I do know they sell an over the counter "mouthwash" type of stuff that is more like a moisturizer - it might help keep your mouth more moist and maybe help reduce the tooth problems.  I THINK, but am not sure, that it's called Biotene.

Also take a look at any medications you are on - many of them can cause dry mouth and some even list tooth decay as a side effect.

I'm sorry you're having so much trouble with your teeth - to me, there's nothing worse than a toothache or an earache and unfortunately, the two very commonly come together.  

One thing that I've started doing and it has helped me some - becuase my teeth have gotten VERY sensitive - is I've started using a "sensitive" formula toothpaste.  It used to be the only one you could find was Sensidyne, but several of the other toothpaste manfuacturers now make it and I have found it has helped to reduce the sensitivity of my teeth. Of course, it doesn't do anything extra for decay than a regular toothpaste, but since I've been using it, I don't have to worry as much about drinking cold or hot liquids (especially the cold ones bothered me)

I hope you feel better soon!
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1530171_tn?1362547225
Hey 21tulips.

I'm a person that dislikes perpetuating sad situations and therefore I try to get to the bottom of things.
This mysterious Genetic Mitochondrial Disorder ( this is a made-up label and not a disease! ) that your Doctors suspect is actually one of  the consequences of a pathogenic infection. Most likely this infection is responsible for most of your troubles . It affects first
systems or parts of the body that have a Genetic predisposition.
The pathogens' affinity toward sterols, attracts them to cell membranes,
nerve cells, brain tissue and wherever cholesterol is found.
Once the cells' membrane and cholesterol get compromised and used as fuel by the pathogens, then ATP energy production by the Mitochondria
gets disrupted and eventually the cells die off!  
So by collapsing the "underlying cause" everything else should collapse.
Mitochondria , cell membrane, cholesterol all revert to pre-infection
states, organs and systems back to normal functioning!
Yes, it all makes sense in general terms, however, the one thing that your doctors did not or could not find is this pathogen.
They are not knowledgeable in this field, to detect, diagnose and treat this
infection.
All  the blood tests, MRIs, and scans  will not detect Pathogenic Mycoplasmas.
Mycoplasmas are Parasitic Viral Bacteriums, elusive, evasive, opportunistic and invasive.
So please read some of my posts for relative information on this,
  in this community and the Fibro community.
As it is a systemic infection, it can affect any or many parts, organs or systems in the body.
It also pertains to Sjogren's, FMS, CFS, Graves disease, Lupus, Hashimotos etc, as they are all Mycoplasma Infections!
The vast majority of neuro-degenerative and autoimmune diseases, including Lyme Disease are initiated by the presence of a Pathogenic Mycoplasma Infection.
If you need more info let me know.
Blessings
Nikodicreta

P.S. For great oral health look into "oil pulling with extra virgin coconut oil"
Very impressive to say the least! I do this each and every morning.






  
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i was tested for sjogrens but it came out negative.  i do also have dry eyes, and a super dry mouth - I drink constantly.  although my meds may have contributed to the dental probs or made them worse, i started having probs with my teeth before i took a lot of meds.  Kind of a chicken or egg thing I guess.  Thanks for the suggestions, I'm going to try them- my teeth are sensitive too.  Crazy how a little thing like a tooth can hurt so bad!  I've been slowly feeling better though.    
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Thanks for your info, I'm going to check it out.  I had never heard of Pathogenic Mycoplasmas and I'm always looking for as much info as I can to help with my health.

Thanks for the oil pulling tip!  I actually do have a big thing of extra virgin coconut oil because I use it directly on skin problems and in cooking- so I'm going to start oil pulling immediately!

I should explain that the reason that drs are exploring a genetic disorder now is because my son also started getting sick with the same kind of specific problems and I also have an aunt who is sick with the same problems.  Also most members of my maternal family (mother, grandmother, aunts, etc.) have some "soft" signs such as migraines and chronic muscle soreness and I have a cousin with fibromyalgia. Some members of my paternal family have had mysterious chronic pain as well and I had an uncle die of ALS.  (Great genes right?!)

I wasn't talking about some general mitochondrial problems- there are specific mitochondrial disorders that can be tested with genetic testing just like muscular dystrophies and the like.  In fact, the MDA even deals with these mitochondrial disorders (such as McArdles and MERRF to name a couple.)  Right now trying to get my insurance to pay for genetic testing and/or muscle biopsy to see if one of these specific mitochondrial disorders is proper diagnosis.
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My teeth have been a nightmare with decay, molars breaking off right down to the gum line, root canals, fillings. ugh! I brush and floss daily!  Finally, after thousands of dollars of dental treatment over the years, i find i have severe deficiencies of vitamin D, calcium, and magnesium.  All three are essential for healthy bones and teeth.

Vitamin D deficiency is pretty common in autoimmune disorders. You need vitamin D for calcium absorption. Magnesium is the most important co factor for vitamin D absorption and a deficiency also will eventually lead to calcium deficiency. Besides autoimmune diseases, dry mouth and dry eyes are symptoms of magnesium (and possibly potassium) deficiency.
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Avatar_f_tn
Like Nikoreta's post above says, pathogens.  See, I don't believe in autoimmune, your immune system is attacking something unseen. Autoimmune is, for the most part, just a convenient place for the medical community to file you away. When it comes to tooth decay, spirochetes play a big part in that, they're like the bacteria that cause Lyme disease, and if you go to that forum, you'll find some discussions on dental problems there too.  Ask your dentist about the role spriochetes play in decay, if he doesn't know, or says very little, you need a new dentist.  The problem is, this is all one big thing, but we take the diagnostic word of someone who probably doesn't know anymore than we do, as gospel.  Then we are in a trap that is very hard to get out of.
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1530171_tn?1362547225
As I mentioned before in my previous post here:
"The vast majority of neuro-degenerative and autoimmune diseases, including Lyme Disease are initiated by the presence of a Pathogenic Mycoplasma Infections "
As the philosopher Schopenhauer said, "All truth goes through three stages. First, it is ridiculed. Then, it is violently opposed. Finally, it is accepted as self-evident." Within this decade, people who ignore the significance of mycoplasma-initiated disease will be camping in the same camp with those in the Flat-Earth Society.

The majority of sufferers of such infections or co-infections have high tartaric acid levels. Many  also have higher than average dental tartar on their teeth. There is a suspicion that tartaric acid crystals  are present
in dental tartar.
(a urine test will reveal  tartaric acid levels easily, and most labs should be able to analyse the composition of dental tartar.
The simplest remedy would be with malic acid supplements (corrects the metablolic inefficiencies caused by tartaric acid) Oil pulling with
Extra Virgin Coconut Oil, and also mineral supplementation for any minerals you may deficient in. (Mg,Ca,K,Fe mainly) Some  you need Hair analysis vs blood tests for accuracy-look all this up.
Malic acid would help with joint and muscle pain and also with fatigue issues, as it is instrumental in the Krebs cycle- a  crucial metabolic and energy process. Malic acid is very deficient in FMS, CFS, MS and most
other Pathogenic mycoplasma initiated diseases.

Let me know if you have any questions, however, I urge you to seriously look into the infectious origin of your condition(s)- pathogenic mycoplasmas and such.
Blessings to all,
Nikodicreta

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Avatar_f_tn
Although you might have Drs exploring the possibility of genetic disorders of the mitochondria, there is something that they fail to see.  A mycoplasma is small enough to live inside any cellular organelle, and they especially like the mitochondria.  Less work to get energy.  The ability that they share with viruses, to insert into DNA is often overlooked, just as they are.
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1793142_tn?1315382976
Wow! I have been out of it the past week.  I kept going back to the dentist, sure they missed something because after the root canal and two fillings the pain got so much worse, I was sure I needed one or more root canals again.  However, it was just my facial nerves going crazy and giving me the worst pain I have ever had... and this is saying a lot!  After the pain, then that side of my face goes numb and I can't move it properly (as if I had a stroke.)  The same thing happened on this side of my face during the last sinus infection I had a couple months ago.   My facial nerves are out of control and super over-sensitive!

But what I wanted to say is that, like I said I would, I did look into mycoplasmas and plan to ask my doctor to test me.  My PCP is actually very open minded and usually refers me to whomever I ask him to and explores options I would like to look into.  Is it a blood test that detects mycoplasmas?  

Also I have been oil pulling, and it is heavenly to my painful mouth!  I have been using biotene during the day too.

I always look for new things to help with my poor health and new reasons for my poor health... so thanks to you Nikodicreta and all others for your suggestions!
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1530171_tn?1362547225
Hey 21tulips,
You are welcome!
Well for starters, I feel you have moved up a level or 2.
Your self-worth can use it!
The trauma from your root canal is the instigator, for all your troubles with your facial pain and numbness. The root canal is the pathway to  the surrounding facial nerves.
Mycoplasmas, mycotoxins and  other pathogens get activated
often following some trauma, illness, infection or other "weakening"event.
Very opportunistic by nature, they attempt to invade cells of weaker and more vulnerable parts of the body.
Test that you can have easily done for exploratory purposes are:
1. Blood volume test.  Typical to mycoplasma infections would be 10-40%
less blood volume (standard is 30ml/kg red cell mass to body weight)
2. 24-H Holter ECG  test. This you take home and wear for 24H
The clinician would be looking for abnormal T-wave patterns, instead of peaks it would be valleys and inversions, with no evident etiology!

These tests could be done in L.V. as long as the doctor is familiar with
Blood Volume testing. The 2nd is rather straight forward.
As I mentioned these are indicative of the presence of  PMIs, however, this will put things in better perspective for you.
Should they be positive, then the next step would be the Polymerase Chain Reaction Test to confirm the PMI, and identify the exact agent within the Mycoplasma (diagnostic)

You can reverse your poor health. There is nothing incurable!
One thing that you can do is go -at your earliest convenience-
to Hay House Radio and listen to the most gifted Health Educators, Spiritual Teachers and Holistic Healers in our society.
Your Spirit, Body and Soul one day will Thank you for it!!!
It is absolutely free (no access to their archives though) .
I am a member of the Hay House Wisdom Community and this has become an integral part of my life.
Please pm me or post again if you need more info.
Blessings,
Nikodicreta
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1530171_tn?1362547225
Hey 21tulips,
You are welcome!
Well for starters, I feel you have moved up a level or 2.
Your self-worth can use it!
The trauma from your root canal is the instigator, for all your troubles with your facial pain and numbness. The root canal is the pathway to  the surrounding facial nerves.
Mycoplasmas, mycotoxins and  other pathogens get activated
often following some trauma, illness, infection or other "weakening"event.
Very opportunistic by nature, they attempt to invade cells of weaker and more vulnerable parts of the body.
Test that you can have easily done for exploratory purposes are:
1. Blood volume test.  Typical to mycoplasma infections would be 10-40%
less blood volume (standard is 30ml/kg red cell mass to body weight)
2. 24-H Holter ECG  test. This you take home and wear for 24H
The clinician would be looking for abnormal T-wave patterns, instead of peaks it would be valleys and inversions, with no evident etiology!

These tests could be done in L.V. as long as the doctor is familiar with
Blood Volume testing. The 2nd is rather straight forward.
As I mentioned these are indicative of the presence of  PMIs, however, this will put things in better perspective for you.
Should they be positive, then the next step would be the Polymerase Chain Reaction Test to confirm the PMI, and identify the exact agent within the Mycoplasma (diagnostic)

You can reverse your poor health. There is nothing incurable!
One thing that you can do is go -at your earliest convenience-
to Hay House Radio and listen to the most gifted Health Educators, Spiritual Teachers and Holistic Healers in our society.
Your Spirit, Body and Soul one day will Thank you for it!!!
It is absolutely free (no access to their archives though) .
I am a member of the Hay House Wisdom Community and this has become an integral part of my life.
Please pm me or post again if you need more info.
Blessings,
Nikodicreta
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Hi. Experiencing all this as I type!!!!  Huge question for folks---- have any of. You filed medically on your insurance with success?   I am actually doing that. Now in a major fight.  They say our problems DO NOT cause teeth to fall out.   Not talking dental benefits --- medical.   I. Personally see lots of info supporting my claim.   HELP ANYONE!!??  Lucy K
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Besides the severe deficiency states i mentioned, i also have had untreated hypothyroidism for many years (symptoms for over 24 years actually). Hypothyroidism lists poor periodontal health as a symptom.

I live in Australia so i'm covered by universal health care. This includes dental but i prefer my private dentist.  If i had optional insurance then i could claim back a % of what i paid to my private dentist.

If i was in your situation, i would print out any supporting evidence from well respected medical journals/studies and medical websites about my conditions and how it affects dental health and add this information to my insurance claim.
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Avatar_f_tn
My mom has been having the same problems for 6 years. It started when she was 32 and it was, at first, rashes, fevers and sever body and facial swelling. She thought it was allergies. She's  is now down to her last 12 teeth and NO ONE will diagnose her. One by one her teeth have been crumbling out of her head and braking apart. At first the dentist told her it was because she was a tooth grinder at night. It started when she woke us one morning and ALL of her teeth wer like harden gummy bears. ( That is the only way to really describe it, because you would touch them and they would dent when she touched them)  My poor mother has seen 27 doctors in California and she is giving up the fight little by little. She saw a pain managemet specialest and he told her it was Fibro, and that Fibro was an autoimmune disorder causes her to have groups of nervs to just die and cause her extream pain when touched, it also causess her to go paralized from the chest down. She has HORRIFIC sinuse infections and an infection in her jaw that has been diagnosed as osteomyelitis,and it has eaten out the bottom of her face, but she had her teeth problem much longer before the infection of her jaw. She had her teeth fixed, and she was always a 3 times a day brusher and flosser, but it progressed quickly and is eating the bones in her jaw.The worst part is that whatever is causeing this has also given her multi- system organ failure. First her gaul bladder, then GI tract, then her lungs and most recently her liver and kidneys. Even after seeing 27 doctors, she is getting no help. Her pain management specialest has done all he can, but now he is getting ready to make her comfortable so she can die in less pain. The most bizzar part is that only the exposed part of the tooth and the jaw bone is the trouble, the roots are fine. I am not sure if ANYONE can help but she is willing talk to anyone, (doctor or persons with simular problems) to try to find help.
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Avatar_f_tn
My mom has been having the same problems for 6 years. It started when she was 32 and it was, at first, rashes, fevers and sever body and facial swelling. She thought it was allergies. She's  is now down to her last 12 teeth and NO ONE will diagnose her. One by one her teeth have been crumbling out of her head and braking apart. At first the dentist told her it was because she was a tooth grinder at night. It started when she woke us one morning and ALL of her teeth wer like harden gummy bears. ( That is the only way to really describe it, because you would touch them and they would dent when she touched them)  My poor mother has seen 27 doctors in California and she is giving up the fight little by little. She saw a pain managemet specialest and he told her it was Fibro, and that Fibro was an autoimmune disorder causes her to have groups of nervs to just die and cause her extream pain when touched, it also causess her to go paralized from the chest down. She has HORRIFIC sinuse infections and an infection in her jaw that has been diagnosed as osteomyelitis,and it has eaten out the bottom of her face, but she had her teeth problem much longer before the infection of her jaw. She had her teeth fixed, and she was always a 3 times a day brusher and flosser, but it progressed quickly and is eating the bones in her jaw.The worst part is that whatever is causeing this has also given her multi- system organ failure. First her gaul bladder, then GI tract, then her lungs and most recently her liver and kidneys. Even after seeing 27 doctors, she is getting no help. Her pain management specialest has done all he can, but now he is getting ready to make her comfortable so she can die in less pain. The most bizzar part is that only the exposed part of the tooth and the jaw bone is the trouble, the roots are fine. I am not sure if ANYONE can help but she is willing talk to anyone, (doctor or persons with simular problems) to try to find help.
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The bacteria strains most commonly responsible include septicaemia (blood poisoning) are Escherichia coli (E. coli), Pneumococcus, Klebsiella, Pseudomonas, Staphylococcus and Streptococcus. Two bacteria suspects in particular (due to chronic sinus infection) are staphylococcus aureus and pseudomonas aeruginosa.

***

"Without medical treatment, the bacteria in the bloodstream can cause serious and potentially lethal complications, including:

Endocarditis - inflammation of the inner lining of the heart (endocardium).
Pericarditis - inflammation of the membrane that encloses the heart (pericardium).
Meningitis - inflammation of the membranes that enclose the brain and spinal cord (meninges).
Osteomyelitis - bone infection.
Infectious arthritis - joint infection.
Septic shock - severe drop in blood pressure, which can lead to organ failure. This is also known as sepsis."

Excerpt from Better Health Channel - Septicaemia

***

"Dr. Palmer and his colleagues are exploring the role of communities of bacteria called biofilms in the sinuses of chronic sinusitis patients. The investigators speculate that in some individuals, biofilms — particularly those containing the bacteria Pseudomonas aeruginosa or Staphylococcus aureus — can spur the immune system to mount an overexuberant inflammatory response that leads to sinusitis symptoms."

Excerpt from NY Times - When Sinus Problems Won’t Go Away
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Avatar_m_tn
Dear 21tulips,

If you have any Scottish or northern european ancestry, you may well lack a gene that allows your body to process mold toxins. Aprox. 25% of the US Caucasian population lacks this gene. Molds that commonly grow in wet/damp conditions are of the same type that are used to produce biological weapons. These were used on the Kurds and US troops in the Iraq war.

Mold toxins pass through the blood brain barrier and wreck havoc on one's neurochemistry(depression, anxiety,etc) impact the endocrine system by effecting the hypothalmus and pituitary(menstrual, thyroid,, adrenals, etc.), and compromise the immune system. It is referred to as a "stealth pathogen" in that it creates a plethora of disparate symptoms that uninformed docs diagnose and treat as unrelated diseases. Three members   of my family met untimely deaths from this condition. I was fortunate enough to find a doc that was clued in. You can find out if you have this condition through a gene test, and there are tests that can determine how much mold exposure you have had.

My symptoms started after moving into a house that had been in a flood. Asides from several symptoms that forced me to retire, I contracted a tpathogen called mycoplasma which can eat away your teeth at an astounding pace. In the course of 6 months all my crowns have fallen out and I will have to have all my teeth removed.

Mold illness has not been pursued by public health or the medical establishment due largely to political and economic pressures. If a connection could be established between our symptoms and mold exposure contractors would be liable for bad building practices, insurance companies would have to pay for remediation and medical treatment, etc. There is a book called Mold Warriors which you might find helpful.

Good Luck
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Avatar_m_tn
Hello, Do u have an advice on oil pulling for people suffering from vasculitis? I have this doubt since oil pulling improves your immunity while the main drug for vasculitis and other auto immune disorders is immune suppressant. There is an inherent anomaly.
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I've been battling auto-immune diseases for many years and have also been doing "oil-pulling" daily for nearly 2 years. Too late to save my teeth, but amazing results generally.
I use organic, cold-pressed oils like sesame, coconut, almond, grape seed, macadamia & rotate them as some are better e.g. for new growth of  hair lost through medications.
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Avatar_f_tn
I have very strong Scottich/Irish/English ancestry....what is the test called? I have always felt sensitive to molds - severe headache, nausea, lightheadedness around it - myself and 2/4 siblings have autoimmune - severe - mixed connective tissue is the general diagnosis - one of these siblings has false teeth at age 55, one has a current broken front tooth - I broke my front tooth with a mild tripping fall before it was even fully grown - then I developed a severe abscess before it could be crowned - I have moved southward - migrating from upstate NY to now living in Southern Florida because of joint pain (cold hurts intolerable) now living in an area that has been basically destroyed by a hurricane in the past - many homes and buildings most likely contain high amounts of mold - just the high humidity alone creates a mold friendly environment - my autoimmune symptoms have skyrocketed out of control since I have moved here - I am very torn - cold hurts - now maybe the mold is making me have more pain - but yes after spending literally thousands of dollars on my teeth - not including my dental insurance spending multiple thousands - I am seriously considering having them all pulled out because they are crumbling and decaying at a faster and faster rate...
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Avatar_f_tn
I'm so glad I just saw this post. I suddenly(In the past 10 years) have horrible teeth. Growing up I never had a cavity, filling,,,anything. Suddenly I have decay, my teeth are breaking, cavities. It's horribly embarassing. I don't even smile like I used to for fear someone will notice. Just the other day bits of my back molar were breaking off:(

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Avatar_n_tn
I was directed here by someone after posting in another part of the forum http://www.medhelp.org/posts/Anxiety/Can-stress-cause-this/show/2123464 .

I am not even 30, but my teeth are decaying very quickly in a very short space of time (had no filings until 26, then in the last week I had 5 fillings and one tooth is so rotted inside that it needs pulling). My gums have receded very quickly and are getting worse by the month. This morning I have had two other teeth begin to hurt and I can feel the ends of the teeth underneath my thinning gums. I know these will be the next ones to decay. My mouth aches constantly and every few weeks I will get bits of skin on the roof of my mouth peel.

I have had other health issues alongside the above (detailed in my other post), and as this all coincided with moving across country and starting an extremely stressful new job (which I am now trying to leave), I assumed it was brought on by continued stress. However, my mother was recently diagnosed with an autoimmune disorder in her 50s, and this is one avenue I am looking into. Unlike me, her symptoms started only recently and were different to mine (she had sores/scarring that would not heal up, but teeth seemed okay).

The area we moved to is notorious for flooding (although my town doesn't flood much, this general part of the country does to extremes). After reading this, I have gone around the house searching for any mould I could find on windows, etc and scrubbed it off. Not sure if that will do anything, but it's worth a try.

I have resigned myself to the fact that I will likely need all my teeth pulling by the time I reach my 30s and will need implants put in. But perhaps if the infection in my mouth can't spread through my teeth then the rest of my symptoms will go away.
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