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Rhuematoid or Neurological

Hello I posted in Neurology before about some symptoms I had that didnt seem right, but I didnt have many tests seeing as doctors wouldnt do too much.  Now I have a little more to go on.  I had two abormal EEGs, along with the nerve conducitons and muscle tests both showing full body neuropathy.  I had blood work that got me referred back to my PCP by my neurologist that apparently had CPK, and ASMA levels that were abormal.  What could all this mean? I have spasms, weird headaches, my voice goes out or comes out weird, I have seizure like episodes, drop stuff alot, fatigue, feel like something is always touching me,  and cardiomyopathy (biggest shock). HELP
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Avatar universal
The Mayo Clinic is a terrific idea. But do please see a Rheumatologist AND a Nephrologist for your kidney function. Your numbers are telling you that your kidneys aren't behaving. I wouldn't hesitate.
Take care of yourself and be well!
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Avatar universal
Hello Lori, thank u for your response.  I was thinking of going to a Rheumatologist.  I just had an appointment with my DR. and he seemed out of ideas.  After joking about the Mayo Clinic our first appointment, he now says it is a probable next step with my case (I've heard this before).  I have had an ANA titer, CK, Western Blot, TSH, and Hemoglobin A1C.  The only abnormal was the creatnine kinase.  It was at 273. Not even super high.
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Avatar universal
I would suggest you seeing a very good Rheumatologist perferably from a teaching hospital. He/She will give you tests that the other doctors usually don't even think of.
Have you had a RA Factor, ANA, CCP, Lupus Panal, etc.....
What are the tests that you did take?

Be well!
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