Too many symptoms for one type of practitioner?

[triplevision606]

I could start with the diagnosis that I do have'

Ehlers-Danlos Syndrome
Meniere’s disease
Depression/Anxiety
IBS
Diverticulosis/Diverticulitis

About six months ago, I started having blurry vision after work which has progressed to hazy vision, blurry vision, double, triple, and at worst quadruple vision after I have been reading (which is a must for my profession) I have difficulty with Insomnia, fatigue, muscle fatigue and exhaustion, joint pain extreme at times, hot flashes, ultra sensitive to heat and cold, swallowing difficulty, lower leg and feet numbness when sitting, I have nausea and general malaise often, and headaches. I have had my eye glasses prescription thouroughally checked changed and changed again with no improvement. Doctor sent me to Neuro opthomology where I was put through numerous tests which have thus far given us no answers. Each doctor has his/her own specialty which makes it pretty difficult to discuss the other symptoms. I have a specialist for all of the initially stated diagnosis but I feel like we are missing something especially with the triple vision. Does anyone have any advice?

[Red_Star]

I found a fairly extensive symptoms list on Chiari One but this is not a complete list.

"The list below attempts to put symptoms in the order of importance but, it is difficult to say with certainty which symptoms are more common than others. There have been no formal or controlled studies of the percentages of patients that suffer from each symptom. In addition, symptoms may differ from patient to patient depending on where pressure is exerted (i.e. whether tonsillar descent is causing pressure on the brainstem or not, whether syrinx exists, etc).

In general, people without herniation may not suffer symptoms associated with brainstem compression but, rather, with lack of CSF flow and raised ICP. These symptoms tend to mirror those of PTC and include some of the ones listed below.

Headache (esp. if daily or at lower back of head)
Painful tension in neck
Fatigue
Migraines
Dizziness
Visual disturbances / loss of vision / spots in vision / double vision / seeing spots or "halos" / nystagmus
Tingling / numbness in the extremeties
General imbalance / clumsiness
Memory loss
Restricted movement
Intolerance to bright light / difficulty adjusting to light change
Vertigo from position change or sudden standing
Difficulty walking on uneven ground / feeling ground under feet
Poor / degraded motor skills
Difficulty driving
Difficulty negotiating steps
Pressure / pain in the neck
Pressure / pain behind the eyes (soreness in the eyeballs)
Back pain
Neck spasms
Insomnia
Ringing in ears (like the tone heard in a hearing test)
Swaying
Pain when changing position
Tingling / crawling feeling on scalp
Intolerance to loud / confusing sounds
Decreased sensation to touch in extremeties
Decreased sensitivity to temperature
Pain & tension along ear / eye / jawline
Difficulty swallowing / lump in throat / sore throat / swollen lymph nodes
Drooling
Spontaneous vertigo
Hand tremors
Poor blood circulation / cold hands & feet
Sinus / mucous problems
Sleep apnea
Decreased muscle tone
Pressure in ears / ears feel stopped up
Nausea
Difficulty reading / focusing on text
Depth perception problems
Burning sensation in extremeties / shoulder blades
Menstrual problems / severe cramping during period
Fluid-like sound in ears (like water running)
Loss of sexual interest / lack of sensation in pelvic area
Pulling sensation while sitting / standing
Intense itchiness w/profuse sweating
Slurred speech
Gag reflex problems / lack of gag reflex
Pressure / tightness in chest
Loss of bladder control
Frequent urination
Dehydration / excessive thirst
Electric like burning sensations
Unequal pupil size
Loss of taste
Popping / cracking sounds in neck or upper back when stretching
Dizziness
Loss of smell / problems with sense of smell
Dry skin and lips
Sudden / abrupt changes in blood pressure due to awkward position of head
Hiccups associated with drinking carbonated beverages
Skin problems

Other: migraines, oscillopsia, lump in throat, colour blindness, albinism, visual floaters, astymosism, thinning hair, hear heartbeat in ears, throat closes when lying flat, vomit in sleep, swollen face, low body temperature, low blood pressure, legs feel heavy, "strangling" feeling, "floating" sensation, thickening of finger joints."

[Red_Star]

"Patients who exhibit extreme joint hypermobility and connective tissue weakness as a result of Ehlers-Danlos syndrome or Marfan Syndrome are susceptible to instabilities of the craniocervical junction and thus acquiring a Chiari Malformation."

Arnold Chiari Malformation is where the cerebellum (the lower, back part of the brain) and brain stem protrude, or herniate, through the foramen magnum and into the spinal cord.  You may also have other conditions linked to Arnold Chiari Malformation such as hydrocephalus, syringomyelia, spinal curvature, tethered spinal cord syndrome.

There are over 100 symptoms of Arnold Chiari Malformation and your symptoms are mentioned including the conditions you have been already diagnosed with; Arnold Chiari Malformation mimics Meniere's disease and lists IBS as a symptom.  A neurologist should be consulted.

***
The symptoms of Chiari malformation include:

Headache -- This is the most common symptom of Chiari malformation. The headache is often pressure like and usually begins in the back of the head often radiates behind the eyes. Coughing, laughing, bending forward, sneezing or looking up can worsen the headache. Headache may be confused with migraine.

Neck Pain -- often pressure like and radiating down the spine and across the shoulders.

Dizziness/vertigo -- often worsened by extension of the neck

Vague pains throughout the body

Impaired balance

Clumsiness

Chronic nausea

Foggy thinking, poor memory and concentration

Frequent or urgent urination

Irritable bowel syndrome

Auditory Symptoms -- ringing in the ears, decrease in the ability to hear or sensitivity to sounds

Difficulty swallowing

Changes in the voice -- This can include hoarseness or the inability to regulate the voice when shouting or singing.

Visual Symptoms -- including double vision, sensitivity to light, blind spots.

***

A lot of info on the Chiari Community...

http://www.medhelp.org/posts/Chiari-Malformation/Unofficial-Symptoms-List-/show/1192372

[TheLightSeeker]

Hey triplevision606.
Welcome ti the forum.
I wish it could be under better circumstances, however I will do my best ,
to help.
A more holistic approach is necessary.
You are suffering from conditions that suggest systemic autoimmune and
neuro-degenerative diseases. Your history is consistent with pathogenic underlying or initiating infectious conditions.
Do not attempt to isolate each set of symptoms, as this is the limitation or bias, if I may say ,of the specialists. Inter-systemic connections have to be established in order to piece this together.
The lack of clear answers also makes the case stronger for pathogenic infections as there are various possible "undetectable" pathogens, hiding from the immune system and your doctors.
My suspicion is pathogenic mycoplasma infection.
Please read related posts here and the fibro community regarding Mycoplasma infections (which include lyme and borrelia as they are co-infections in most cases)
You can also visit immed.org for more details.
The majority of doctors are not familiar with this and testing is very specific. Tests are only performed by just a handful of labs in the country.
An internist usually is the doctor to see, when the symptoms and conditions are affecting different systems of the body.
The only condition is that he must have training in this field.
Best, try to get in touch with Dr. Garth Nicolson, the expert in this field.
You can access this info from the  previous link .
Of course there are other possibilities, however, this one conforms the most with what you posted.
Let me know if you need more details.
My advice does not constitute professional consultation.
Take care.
Blessings,
Nikodicreta