Undiagnosed Chronic URQ Pain, Sphincter of Oddi Disfunction

[sbrummer]

In  7/2011, I had pressure in my chest. I was sent to a cardiologist. I had a normal stress test, nuclear imaging test, and echocardiogram. In August 2011, I had pain in my chest and went to the ER. My EKG was normal and I was admitted for more testing. I had an MRCP, nuclear imaging studies, another echocardiogram, and a heart catheterization. I had sludge in my gallbladder but the other tests came back fine. The very next week, I had my gallbladder removed.

After I had my gallbladder out, I still had pain. I got spikes of pain that sent me back to the ER repeatedly.  In late 2011, I was sent to a GI doctor who did a colonoscopy. It was normal. In early 2012, I had some labs come back abnormal, so I went to the Biliary Clinic at Duke. They did an ERCP in April 2012.  After my ERCP, my pain was constant.  I still had recurrent flareups that sent me to the ER.  The doctors at the ER got tired of seeing me and told me to go to a pain clinic and stop coming to the ER.

I went to the Pain Clinic at Duke in 9/2012 who checked for pinched nerves; I didn’t have any. I was given a TENS unit and put on Tramadol. It only sort of helped. I still had pain every minute of every day.  I still had to go to the ER, but I went less frequently because I knew they didn't want me there.  

On 3/15/13, my pain changed, so I went back to the Biliary Clinic at Duke.  I was sent to have a trigger point injection.  It didn’t last so I had another MRCP at Duke and was told again that it’s normal.

I’m in serious pain 24/7 and I’ll do almost anything at this point.  I know that my body runs at a different level of normal than other people.  Normal levels for others are high levels for me.  I know my body better than anyone else and I need someone who’ll listen.

I know there’s something wrong because I can feel it.  This pain is ruining my life and I need help.  I need answers.  Please help me.

[sbrummer]

I'm having a hard time finding the blog.  Do you have more info?

[karajo]

I've wondered the same thing about myself.  Is it Sphencter of Oddi.  I did some research on the internet and found a place where a husband tells the story of what his wife went through for years.  Search stories of sphcter of oddi dyfunction.  It's called blog spheter of oddi *******.  This was a very interesting story.