Undiagnosed mystery can anyone help?

[Jennifwe223]

I am wondering if anyone would be able to help me or if someone has suggestions on what I can do, who I should see, anything at all would be appreciated at this point. I am a 23 year old female who has been suffering from many symptoms on and off for the past 7 years and doctors have no clue what it is or where to send me next so I am at a lost. My symptoms are dizziness, headaches, tremors/shaking  through my whole body, teeth chattering, fatigue, falling, lack of balance, unable to walk or talk, uncontrolled laughing and crying, chills, blurry vision, nauseous, leart rate increases sometimes,easily out of breath from doing a simple task( getting changed, showering, along with many more. This affects my entire body. I can feel the neurons in the back of my head, and back divide and feel them individually rapidly moving. All of these things occur together at once( I call them episodes). Sometimes a simple task such as just sitting up becomes a challenge. This can last from 1 minute or can at times  continue for an hour. I will have my good and bad times because I can go a few months with feeling well and good and other months I feel horrible and will have constant episodes where I can't even go out with friends or anywhere. The one thing that doctors are not understanding even when they see it first hand themselves is that I am fully aware of what is happening to me at this time and although I can't speak, I can remember everything after my episodes are completed. Every time my symptoms go away, and then the episode returns, I am presented with different symptoms along with some of the same ones as the previous times. If anyone has any idea of what this could possibly be or can respond back that would be great! If you have questions or need further information I will be happy to share. Thank you

[rsk714]

I just saw the post of the last Thelightseeker.  They are spot on!!!!!!!!  Its funny after I sent my response I went back to read some of the others and was blown away that someone had mentioned the same thing.   I am telling you with confidence that you need to do this.  I am worried about you and your symptoms will only get worse.  Trust me, I was headed to a wheel chair.  Not good can come from letting it go.  Let me know what you think.... :)

[rsk714]

I'm sorry I just got your post.  I tested negative too!!  I was told by a lyme literate physician that I needed a more specific test that will show lyme when it has turned chronic.  The lab is in Palo Alto California.  You simply call their 800 # order a test kit (free) and take it to your family physician and they will draw your blood and send it in for you.  Let me know how you make out.  Do not except your negative test.  When its chronic you don't make the antibodies to make a positive test so you need the more specific test.  So sorry, wish I had gotten on here sooner.   Let me know :)

[TheLightSeeker]

Did you know that standard serum thyroid tests, miss hypotyroidism MORE
times than not?
If you did not get Free T3 (ft3), Free T4 (ft4), AND Reverse T3 (rt3), you have not ruled out low thyroid function!

Most people do not know that the thyroid hormones at the cellular level
help remove cellular waste (from dead cells) by providing energy and that they also activate enzymes responsible for cellular waste elimination.
And if this process is impaired due to low thyroid function, (not to confuse with serum thyroid levels) the immune system reacts adversely to the waste proteins, which remain unprocessed in the body (autoimmune reaction).

Lyme disease, when chronic, is not only notoriously difficult to diagnose and treat, but you're up against almost the entire conventional medical system,that does not fully recognize Lyme disease as a chronic infectious condition!

You need an LLMD (Lyme Literate Medical Doctor) and testing to be done
by IGeneX Labs. They're the golden standard in Lyme's testing!
A complete Borrelia and Co-infections is recommended.

Jenndance09 made a good suggestion to rule out candida.
If your doctors haven't tested you for this or other deficiencies properly, perhaps you should be looking at doctors who are more thorough and more holistic minded.

Take care,
Niko

[Jenndance09]

Definitely sounds auto immune and I have a friend with Thyroid and Hashimoto's. Check out this. Candida causes so many issues.
http://www.*************************/the-candida-and-hypothyroid-connection/

She is finding relief in this product and so are many others!!!
Take the Triplex Combo and get relief!
http://www.plexusslim.com/staythirsty

[Jennifwe223]

Hi, a lot of people are telling me its an autoimmune problem have heard that a lot with the exception of doctors telling me its all in my head and i am somehow making all of these symptoms happen which is deff 100% not the case! I was just tested for Lyme along with 15 other things last year and got a lot of blood work done at once and everything came back normal. Sorry to hear that you have lyme disease? how are you doing? At a lost not sure which other ones to get tested for because there are so many autoimmune diseases and I have already got tested for quite a few. The fact that I get new symptoms every time it reappears is strange because now I am experiencing internal chills every day along with pain. Thank you for the advice

[Jennifwe223]

Hi, I have been diagnosed with both Arnold Chiari (5mm) and EDS however doctors believe it is something different than Chairi. Last year I got checked for my Chiari and its down to 3mm which supposedly means that they do not consider it to be Chiari anymore it basically went away and should not be causing these episodes. I have been to the Chiari Institute where I was first diagnosed with it and so glad to hear that it got better over the years and did not need surgery. I just got tested for thyroid this week and it came back normal. Thank you for the advice, I appreciate it!

[rsk714]

I would almost guess for sure that you have something autoimmune...Have you researched Lyme disease?  All of the symptoms you described are symptoms of chronic lyme disease.  I was diagnosed in 2005.  Unfortunately I was also diagnosed with much more as it causes other autoimmune diseases.  Let me know what you think...

[TheLightSeeker]

If you have been diagnosed with both Chiari and EDS, there are a few things you can try to have done alleviate your suffering and lessen your symptoms.
You need to:
1.  Find a GREAT Chiary neurologist, to help reduce intra-cranial pressure, as much as possible, specially if you have *hydrocephalus.
2. Look into, Vitamin C mega-dosing  (up to 5000 mg) may help with certain symptoms of EDS.
3. Rule out Endocrine issues, some possibly being related to #1 (pituitary) and/or adrenal issues,due to the ongoing biological stress, leading to adrenal fatigue with possible secondary hypothyroidism.

Please post details regarding the type of EDS and *Chiari, you have been
diagnosed with.

Best wishes.
Niko