What autoimmune diseases fit these symptoms?

[iris986]

1. Muscle spasms in arms, legs, feet, back, ribs and chest. Intermittent

2. Muscle pain from neck down to ankles. Happens continuous when off steroids.

3. The front of my lower legs tighten up as if in spasm.

4. Numbness and tingling in arms and legs.

5. Legs and arms falling asleep.

6. Pleurisy

7. blurred vision

8. Double vision right eye only.

9. leaky bladder.

10. Sharp pains in let side of temple. Intermittent.

11. Severe dry eyes

12. Malar rash on face from sun exposure.

13. Sacral Arthritis

14. Knee pain after taking hot shower.

15. Swollen fingers and knee joints.

16. Fatigue

17. Insomnia

18. scalp pain-intermittent

19. Toe spasms where one toe picks straight up and turns sideways.

20. Major hair loss

21. left sided facial pain-intermittent

22. 26 pound weight loss August 2009 to December 2009

23. dizziness-intermittent

24. Nausea

25. Memory issues

26. low blood pressure.

27. Ulcers in mouth and nose-intermittent

28. rough skin showed up on knees, elbows, knuckles, ankles

29. Bad night sweats

30. Spreading muscle spasm from arm to back to ribs to chest, very painful

31. Bruise easily


Elevated sed rate

Elevated lupus test

Low Vitamin D

Low Vitamin B-12

Extremely high Nor-epinephrine blood level

Diagnosed so far with UCTD, Livedo Reticularis, Raynauds, Hypoglycemia, Mitral Valve prolapse, Hypothyoidism, complete total thyroidectomy, Vasagal syndrome, IBS, Tinnitus

Meds I am on- Medrol   8mg a day

                      Estradiol  1mg

                      Synthroid 88mcg

                      Vitamin D 1000 IU a day

[iris986]

Broke out in hives

[karajo]

What reaction did you have on plaquinel?

There is a new drug just recently approved for lupus.  It's called Benlysta.  It is really new.  And I have no idea what the side effects would be.  

I have the leaky bladder too.  I haven't found urologist to be very helpful.  Hopefully you'll get one that will help.

[iris986]

Have tried plaquenil and had a reaction. Have also tried Methotrexate and my bladder burns real bad and i feel so sick on it. I am still on steroids. Going to Urologist to figure out the bladder issue.

[karajo]

I am wondering why they haven't tried something like plaquinel for you.  Many of your symptoms do sound like lupus/fibromyalgia.  

"The Lupus Book" by Dr. Wallace says about Livedo Reticularis: "Some 20 to 30% of all lupus patients have a red mottling or lacelike appearance or livedo reticularis under the skin, causing no symptoms.  It indicates a disordered flow in blood vessels near the skin due to dysregulation of the autonomic nervous system.  Even though normal individuals may demonstrate livedo reticularis and no treatment is ever required, recent work has associated this condition w/ a secondary fibromyalgia, with the circulating lupus anticoagulant, or w/ anticardiolipin antibody.  Livedo reticularis on rare occasions can lead to livedoid vasculitis, a condition that involves superficial skin breakage.  This complication may be treated w/ steroids or colchicine.

You are going through a lot.  Many of us here know what it is like to be going through so much w/o the help needed.  I'm praying for you kid.  You've got to feel better before that grand baby is born!

[free3667]

A lot of it sounds like Lupus. Sjogren's Syndrome may account for the mouth sores, joint pain and swelling, severe dry eyes, fatigue, change in color of hand and feet.  You definitely have inflammation based on a high sed rate.  Addison's Disease could account for many of the symptoms. The problem with autoimmune diseases they seem to mimick to some degree each other. It can be difficult to narrow it down. I don't see lab values to help in that area. You could even have problems with your adrenal system. Your body seems stuck in the "fight or flight response" with the high nor epi.  That alone could cause many of these symptoms too.