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Where to turn when local doctors can't figure it out? Help, please....
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Where to turn when local doctors can't figure it out? Help, please.

I am looking for advice on where to turn now. I am a 37 yr old female. I became very ill this time last year and have since been on disability. What I thought was a very severe sinus infection has turned out to be something completely different. The problem is, after over a dozen physicians, no one has been able to determine what it is. I have been diagnosed with Sarcoidosis in my eyes and autoimmune inflammatory arthritis in my joints (which prevents me from walking for weeks to months at a time), however, my doctors think these are symptoms of something else; some other autoimmune disease. I feel there has to be something more I can do, somewhere else I can turn for help in diagnosing a difficult disease. Any advice you can give would be greatly appreciated. This can't be the end of the road for me...someone out there has to know more than what I've found out so far. Thank you!
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Avatar f tn
My daughter went through years and years of wrong diagnosis until she was diagnosed with a immune disorder at age 16. If you contact the immune deficiency foundation at they can tell you about immune specialists in your area. They also have free info on what tests to ask for and legal rights under the ADA. They are a great help and will talk on the phone too. It is free and maybe your symptoms fit one of the 150 immune disorders.
Hope this helps, maybe someone else has other ideas.
Avatar n tn
Thank you very much for your response. I am so sorry to hear about your daughter. I will contact the Immune deficiency foundation as you suggested. Thank you very much!
Avatar f tn
I hope you can find your answers, I know how long and difficult that search is. I hope the IDF can help you find out what the underlying health problem is. I wish you all the best.
Avatar f tn
Were you able to contact the IDF and if so, was their info helpful in finding you an immunologist? You can also ask them to send you some free booklets about testing, ect.
Hope you are making progress!
1530171 tn?1448133193

There's no  medical mystery, in my opinion.
Sarcoid has probably moved to your blood circulation and  with the help
of fungal agents and  a compromised immune system , has become a systemic inflammatory disease and attacking your joints leading to
Left untreated -the root cause- this may progress to mycoplasma
or mycobacteria infection, which in turn may attack the various organs and glands,as these pathogens love feeding off sterols (chlesterol) which are plentiful there and the nervous system as well, for their growth and spreading. And unfortunately it doesn't stop there.

So by treating the root of the problem- the inability to process these sarcoids efficiently, which are minute grain-like inflammatory cells in a diseased state of existence, accumulating in clusters/nodules around various parts of the body- early enough, you may succeed in altering the terrain, so these opportunistic pathogens I mentioned before, cannot spread and grow, thus eliminating the possibility of chronic infectious disease.
Mycobacteria and mycoplasma are extremely tough to destroy!

You may want to look for a knowledgeable holistic practitioner or N.D. to
facilitate this for you, or if you feel up to it, you can try this on your own,
should you want to invest enough time and effort to learn and implement
such a protocol.

Let me know what you think. I can give you details.

For now some suggestions:
Avoid simple carbs,sugars, grains, gluten like the plague!
  Glucose molecules attach to free proteins causing glucation,
leading to the formation of AGEs (Advanced Glucation End products)and these in turn leading to oxidative damage of your cells and Inflammation.
You cannot afford more of this.  

Do Dr. Coca's Pulse test-free download to test anything ingested for reactivity and allergies.

Start cooking using only virgin coconut oil in your cooking. (All cooking oils are pro-inflammatory when heated. Coconut oil is NOT!) it is also anti-fungal
anti-parasitic, antiviral and antibacterial. Look into "oil pulling" using coconut oil. Visit the coconut research centre site for more details.

Make a list of alkalising foods and drinks, as you will need to increase your
PH , by gearing your diet toward this direction gradually.
An easy to make alkalising drink: Mix in a liter of  filtered water a teaspoon
of baking soda, one 500mg tablet of bromelain -contraindicated if on any blood thinners- and drink throughout the day.

Be active as much as possible! Sarco is known to impair the lymphatic system and the more inactive, the worse it gets.
Gentle bouncing on a mini trampoline -no acrobatics lol!- 5 minutes, multiple times daily, gives your lymphatic system a boost.
Deep breathing engages the Thorax, the Lymph system's largest duct.
Go to normal breathing website for details.
Get a long handle natural bristle brush and massage your entire body,
multiple times daily for another way to engage your lymph.
This is absolutely necessary in order to facilitate waste removal and
cleansing. And drink plenty of filtered water 1H away from meals.

I don't want to bombard you with suggestions, but in order to have a better
chance to fight back and regain your health, you need to start with these fundamentals.

Post again or pm me.

Wish you well.

Avatar f tn
Email me at ***@**** I actually. 3months ago started having what sounds like the same problems and have been to a dozen Dre who seemed clueless until one emergency room Dr figured it out or atleast I hope so I seem to be getting better than I was.
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