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Worried about GBS
Hi everyone. Monday I started having some tingling in both my legs below the kness. It ended up turning into pretty strong pins and needles overnight. Since then (4 days later) I have had decreasing tingling but continued odd sensation, almost like burning or what your calves feel like after a charley horse.
I have also had random pins and needle prick feeling in my arms, legs, torso. I'm having mild back pain. My hands have also been falling asleep more easily.
I'm worried about Guillain Barre since I had a tetanus shot 2 1/2 weeks ago. I am not noticing muscle weakness and I still have my reflexes. It feels better to walk and stand then to sit. Just not sure if it is just slow onset or something else going on. I have also been in limboland for MS as well so not sure what to think. Thanks for your help!
I have also had random pins and needle prick feeling in my arms, legs, torso. I'm having mild back pain. My hands have also been falling asleep more easily.
I'm worried about Guillain Barre since I had a tetanus shot 2 1/2 weeks ago. I am not noticing muscle weakness and I still have my reflexes. It feels better to walk and stand then to sit. Just not sure if it is just slow onset or something else going on. I have also been in limboland for MS as well so not sure what to think. Thanks for your help!
Hi Niko. Thanks for the reply.
I have had so much blood work done for the MS Limboland. I am fine on Vit D and B12 as well as negative for pretty much everything else. The only thing I have not had tested are hormones.
I know this is a while since I posted and here is my update: I am still having some tingling on the bottoms of my feet and palms of my hands. I am also having tingling lips, and it almost feels like they are swollen, but don't look like it. I have random other tingling in my throat, tongue, whole face, right eye... I describe it as numb, but I can feel everything. It's like an altered sensation feeling. .
I go to my neuro in October and see what he thinks. It is just frustrating not knowing what is "my normal" and what is an emergency.
I have had so much blood work done for the MS Limboland. I am fine on Vit D and B12 as well as negative for pretty much everything else. The only thing I have not had tested are hormones.
I know this is a while since I posted and here is my update: I am still having some tingling on the bottoms of my feet and palms of my hands. I am also having tingling lips, and it almost feels like they are swollen, but don't look like it. I have random other tingling in my throat, tongue, whole face, right eye... I describe it as numb, but I can feel everything. It's like an altered sensation feeling. .
I go to my neuro in October and see what he thinks. It is just frustrating not knowing what is "my normal" and what is an emergency.
Hi hc1.
Well the GBS suspicion is statistically a very tiny possibility, even if the adverse reaction to vaccines may be downplayed and under-reported.
While your symptoms are decreasing in intensity, the association to the tetanus vaccine is getting weaker and weaker.
MS Limboland,Hmm. Suspected or possible, but not enough to meet diagnostic criteria, I guess.
Not enough here to attribute to MS, either with any degree of confidence.
Bilateral presentation is uncommon to MS symptomology.
Have your had your Vit. D levels checked recently?
Did you know that deficiency in vitamin D leads to vitamin B12 and B-complex deficiency as low vitamin D can affect the G/I system and its ability to absorb and assimilate certain nutrients and vitamins?
Also your D3 levels (vitamin D 25OH test) should be about 50- 60ng/ml
Memory and other neurological issues, are indirectly associated with low vitamin D, which by the way affects over 3000 genes!
Another deficiency, which is rarely investigated is...well pls read on:
---Vitamin B12
Inorganic mercury may cause a B12 deficiency in the nervous system
as it accumulates in the Blood-Brain-Barrier (BBB) and restricts Methylocobalamin (the only form of B12, used in the nervous system) flow through the BBB.
It is possible to have normal B12 levels through a standard MMA test, yet have a B12 nervous system deficiency, so a test for homocysteine levels in the CSF is needed.
B12 levels should be 500pg/ml minimum to avoid neurological issues.
500pg/ml is the minimum low range in EU much higher than the N.American min. low range.
How about stress levels and adrenals? Have you looked into this at all?
Being in MS Limboland as you stated, automatically makes you a candidate.
If you have chronic stress, internal and/or external, there's a good chance that your adrenal function is low and as long as it is low, most bodily processes are sluggish while the adrenals attempt to recover.
Let me know about this. If you think MS is a complicated condition,
Adrenal dysfunction is amazingly complex.
And on top, conventional endocrinology, when it comes to diagnosis and treatment, will not get a passing grade from me, lol!
Low adrenal function ( also known as hypoadrenalism or adrenal fatigue)
is generally not recognized until there's complete adrenal failure or Addison's disease, which is too late. The roast is already burnt!
A tetanus vaccine may cause some initial adverse reaction with some symptoms, but in the vast majority of cases, they resolve on their own.
BTW,
I'm not a proponent of vaccines and at the same time I'm not a fanatic anti-vaccine activist either. I just think that the vaccine mania has to be toned way-way down, specially with babies and children, now that the diseases
for which they get vaccinated have been almost eradicated decades ago!!!
FYI here's a list (unverified) of the tetanus vaccine ingredients:
sodium phosphate, peptone, bovine extract (U.S. sourced), formaldehyde,
ammonium sulfate, , aluminum potassium sulfate, thimerosal (trace),
gelatin, polysorbate 80 (Tween 80), modified Mueller and Miller medium,
modified Stainer-Scholte medium.
I hope this helps, but please note that my comments are not intended
as a substitute for medical advice.
Best wishes.
Niko
Well the GBS suspicion is statistically a very tiny possibility, even if the adverse reaction to vaccines may be downplayed and under-reported.
While your symptoms are decreasing in intensity, the association to the tetanus vaccine is getting weaker and weaker.
MS Limboland,Hmm. Suspected or possible, but not enough to meet diagnostic criteria, I guess.
Not enough here to attribute to MS, either with any degree of confidence.
Bilateral presentation is uncommon to MS symptomology.
Have your had your Vit. D levels checked recently?
Did you know that deficiency in vitamin D leads to vitamin B12 and B-complex deficiency as low vitamin D can affect the G/I system and its ability to absorb and assimilate certain nutrients and vitamins?
Also your D3 levels (vitamin D 25OH test) should be about 50- 60ng/ml
Memory and other neurological issues, are indirectly associated with low vitamin D, which by the way affects over 3000 genes!
Another deficiency, which is rarely investigated is...well pls read on:
---Vitamin B12
Inorganic mercury may cause a B12 deficiency in the nervous system
as it accumulates in the Blood-Brain-Barrier (BBB) and restricts Methylocobalamin (the only form of B12, used in the nervous system) flow through the BBB.
It is possible to have normal B12 levels through a standard MMA test, yet have a B12 nervous system deficiency, so a test for homocysteine levels in the CSF is needed.
B12 levels should be 500pg/ml minimum to avoid neurological issues.
500pg/ml is the minimum low range in EU much higher than the N.American min. low range.
How about stress levels and adrenals? Have you looked into this at all?
Being in MS Limboland as you stated, automatically makes you a candidate.
If you have chronic stress, internal and/or external, there's a good chance that your adrenal function is low and as long as it is low, most bodily processes are sluggish while the adrenals attempt to recover.
Let me know about this. If you think MS is a complicated condition,
Adrenal dysfunction is amazingly complex.
And on top, conventional endocrinology, when it comes to diagnosis and treatment, will not get a passing grade from me, lol!
Low adrenal function ( also known as hypoadrenalism or adrenal fatigue)
is generally not recognized until there's complete adrenal failure or Addison's disease, which is too late. The roast is already burnt!
A tetanus vaccine may cause some initial adverse reaction with some symptoms, but in the vast majority of cases, they resolve on their own.
BTW,
I'm not a proponent of vaccines and at the same time I'm not a fanatic anti-vaccine activist either. I just think that the vaccine mania has to be toned way-way down, specially with babies and children, now that the diseases
for which they get vaccinated have been almost eradicated decades ago!!!
FYI here's a list (unverified) of the tetanus vaccine ingredients:
sodium phosphate, peptone, bovine extract (U.S. sourced), formaldehyde,
ammonium sulfate, , aluminum potassium sulfate, thimerosal (trace),
gelatin, polysorbate 80 (Tween 80), modified Mueller and Miller medium,
modified Stainer-Scholte medium.
I hope this helps, but please note that my comments are not intended
as a substitute for medical advice.
Best wishes.
Niko
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