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XMRV test

I was diagnosed by Mayo in 2002 with CFS and continue to get worse.  If I took the XMRV test(I have the kit) and came up positive, can anything be done?   I was a trooper for 20 years and lost my job.  I am physically and mentally fit but I was told nothing could be done for me.  Is it worth taking the test now ?


This discussion is related to Cause for violent symptoms in CFS, XMRV?, FMS.
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Avatar universal
Thanks all for your advice, yes it would be 450 out of my own pocket, I think I will pass.  Again thanks for intelligent help
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Avatar universal
I agree with kmil9999. The good news is... you do have treatment options. You might want to check out MedHelp's autoimmune - EXPERT forum and read about co-infections in CFIDS patients. I don't believe that CFS patients have one infection and one infection only causing our symptoms. When our body is weakened, we are at risk for multiple infections and that is why our viral titers are high... not to mention, bacterial infections as well.
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Avatar universal
I also do not believe it would do you any good to get the XMRV test.  The MD's that I have talked to have aligned more with the CDC and do not believe the results the Whitemore Institute got can be duplicated.  (One physician was an infectious disease doctor who was the only one in my area that is supposedly versed in CFIDS)  

In addition, even if it was positive, I do not believe the treatment plan would change at all.  

Hope it helps in any way,
K  
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Avatar universal
I could be wrong but I don't believe insurance is currently covering the expenses right now for XMRV testing. You may want to consider contacting the Whittemore Peterson Institute for additional information. I honestly don't believe that it is worth taking the test, as there is no western medicine treatment right now for Chronic Fatigue Syndrome (AKA: myalgic encephalomyelitis). What has helped me a great deal is seeing a Naturopath physician who does neural therapy and various IV treatments. I also hear that IV vitamin C treatments have been successful for some CFS patients.

Good luck !
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