anyone help me understanding autoimmune pulmonary renal syndromes??

Hi,
    I have undifferentiated connective tissue disoder and hypothryoidism. In past four months i have had three episodes of lower abdo pain. Doc thought it may have been ovarian cyst but scan showed nothing - secomd episode about six weeks ago they thought unrine infection although no absolute proof of that and gave me course of antibiotics. Anyway tow days ago the pain came back with a vengeance and felt worse - today i noticed blood in my urine and went to A and E as it was after normal doctors surgery hours. They detect plus three blood in my urine but no protein and no other sign of infection. I feel shaky and very sore - they seem to think it may be connected with the autoimmune disorder and have advised I see the GP on monday if still in pain (or week after if not) to discuss these three episodes of recent abdo pain and now blood in urine. I'm a bit worried by this as it seems the autoimmune disorder may be attacking my kidneys to me??? any thoughts? what should i ask the specialist whom im due to see on May 14th? they are planning to do repeat blood tests and urine test on 7th but are there any other tests that would rule out kidney involvement now with my utcd??
          Thanks for any help or advice
               Manxie  Reported Report this Spam
Miscategorized
AbuseMember Comments (3)

by Manxie


  Leave a Note
Send Message
Add as Friend

Manxie
Female, 40 years
Isle of Man - United Kingdom
Member since Apr 2008
Mood: Manxie feeling bit better- joints still sore though!
Journal Entry:   "Of work again! this time with lower abdo ..." [Read]
  



, May 14, 2009 04:17PM
To: update
Dear anyone who can help!!
Ok not good news at all at rheumy review today.
1) He now states I definetly have an autoimmune disorder - he just doesnt know what yet. 2) By the blood tests and recent history he thinks it is my immune system that is attacking the kidneys - not a kideny stone at all.
3) My blood presure despite being down at home this last week was up at the clinic and I didnt even feel anxious etc - consequently he has now asked me to double the anti-hypertensives!! this is within someone who had no hypertension a month ago and that is evidenced within his notes at the last review. So insode one month ive gone from no hypertension to maximum dosage of the Ace inhibitor im prescribed only a week ago!!
4) My C reactive protein is 2.5 - he says this proves i have inflammation and alongside the previous high ANA and high anti smooth muscle antibody in past this is why he is now saying deffo autoimmune.
5) He's referred me for tests for wegners granulosistis/sydrome (prob not spelt right) and/or chaug strauss syndrome as he is now querying such a pulmonary/renal disorder. That is real worrying and i wonder if anyone who has that cna help me understand these more so I can work out what I should be watching tests i should ask for or anything else i should know??

I'm a bit shell shocked - this is all happening so **** fast and i dont know much about these syndromes - the blood pressure is very worrying too - if it keeps spiralling god knows what will happen. Oh and i'm still in pain (right lower abdo) and its getting worse again. Comes in bouts and isnt as bad as it was when admitted to hospital. Specialist was like a totally diferent doc today - much more worried, more concerned about my responses, more time given, and genuinley seemed to care - suprised at that and in some ways worried as he was not worried at all nine months ago!- despite ANA 640 over three tests.

I guess i just need to share and see what all you lovely people here can do to reassure or advise me??
Thanks Manxie (Ali)