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dizziness, nausea, fatigue, light sensitivity, headache, cold hands/feet, joint/muscle aches, weakness, What is it?

I am a 26 y-o- Female. For the past 3 months now I have been having strange symptoms like nausea, dizziness (extreme at times), headache behind the eye and sensitivity to light, joint/muscle aches and stiffness mostly in hands and feet but occassionally like a full body flu-type attack, weakness in wrists, cold feet and hands that feel like they are plunged in ice water whenever I take a hot bath/shower, constant feeling of cold so that I just can't get warm, occasional hot flashes and chills, exhaustion and sleepiness all day but hard to stay asleep, and memory problems/disorientation like a brain "fog", flashes and shadows out of the corner of my eyes, and some other symptoms not listed. I have a history of Graves Disease diagnosed at 12 years old and treated for several years with PTU. I had a relapse at the age of 18 and had radioactive ablation of the thyroid done. I have recently seen a rhuematologist due to a slightly elevated RH factor (14) and he drew more labs to detect Lupus and other autoimmune connective tissue disorders, all of which came out negative or normal including the CCP test for rheumatoid arthritis. Though my TSH levels have been hard to keep stable (recently miscarried at 8 weeks with a TSH of 40), this last test was normal (Currently taking thyroxin 100 mcgs and Cytomel 10 mcgs) including antibody and FT4 and FT3 levels. Blood count and lIver tests were also normal. Xrays of hands and chest were normal. Opthamologist visit reported normal eyes except for slight dryness. Other than these, I have a history of repeated low vit D levels, atypical PCOS as determined by cystic ovaries on ultrasound and borderline insulin resistence, but no androgenic factors. I go to neurology in a month's time and also back to rheumatology. I know there are autoimmune disorders of the nervous system that can cause some of these symptoms, but I have not noticed numbness or nerve-like pains or extreme muscle weakness that seem to be found in most of them. I know it is possible that I have the early stages of rhuematoid arthritis as I do have a family history of it, but some of these symptoms don't seem to fit. Any ideas about what could be going on with me and further testing I need to pursue? Thank you.
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Avatar universal
Have you been tested for Lyme disease? I've had it for more then 5 years sounds just like me symptom wise. I have extreme weight-loss also just recently developed bright spotting in my vision having had already the shadows. If you haven't been tested you should. Lyme disease is hard to diagnose took me a year to find out I had it. More then 300,000 people a year contract it some without knowing like me. Many doctors and many specialist later I'm still to this day trying to find things to ease the symptom attacks as they more or less come in waves not like the ones before and very suddenly. I hope I have helped you on your journey to answers
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Avatar universal
This comment is old I realize, but your situation seems to parallel mine! I have hashimoto's thyroiditis, then was iron deficient anemic, then had positive ANA. Had migraines since I was 9. One rhemy said I had sjogrens though bloodwork didn't show it or lupus. Another rhemy said fibromyalgia and unspecified autoimmune. Prednisone and plaquinil have helped a ton though. But not with migraines or my BP. Today it's 154/102. I'm on bp med.
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pls I need help. My name is Cynthia, from Nigeria. Am 21. Am feeling very weak, headaches, blurred eye sight, constant bitter mouth, stooling, nausea atimes and am having shortness of blood. I've taken several fruits and medications but it seems nothing is working and it has lasted for the past 3days now. What do you think might be the cause and what can remedy d situation? thanks.
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Avatar universal
Hi, I'm inclined to think you have lupus or another RA condition. If you have Graves, your immune system is compromised and likely you will acquire more over time. If IBS was your first symptom, left untreated (for parasites) that is all it takes to cause any and all of autoimmune disorders.  If I were you I'd fire all your Dr's and seek a recommended Naturopath/Holistic Practitioner or Physician. All your symptoms are related and sadly MEDical Dr's only treat symptoms without looking for the root cause. Not knowing the cause, the symptoms can only be addressed individually by all these different Dr's that often don't confer with each other, and as one (symptom) seems better, another will appear. Have you tried eliminating gluten? Not saying this is the cause, but it may help = try it and see! Wheat gluten punctures the intestine allowing food particles into the blood stream. This triggers an immune reaction that never shuts down. Taking food grade diatomaceous earth, perhaps a couple of other things to make sure, pick 2 from papaya seeds, black walnut extract, wormwood tea, 2 cloves of garlic a day, mastic gum. This would address the root cause if it's parasites which is mostly the case for all autoimmune disease. One thing the medical establishment has concurred is that autoimmune disease begins in the gut. Not sure why they haven't connected any more dots thus far.. For alleviating symptoms in the meantime a good sublingual vitamin B total, selenium, vitamin D, very large amounts of C, Lysine and a high dose of best quality probiotics is what I'd do. Hoping this helps - have been researching autoimmune disease for some time and encourage you to do your own research, taking control over your own health.
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Avatar universal
135/100 is not serverely high, but it is medically diagnosed as high blood pressure. anything over 130/100 is considered high. also everyone has a different "normal" blood pressure. whats normal for one is abnormal for another. some will have symptoms, others wont.
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Have your Hormones checked. Ill bet your estrogen dominant. My understanding is that a saliva test is the best way to go. Blood tests are inconclusive because of fluctuations depending on where you are in your menstrual cycle. Most of your symptoms sound like your estrogen dominance and a natural progesterone cream and maybe some Astragalus to regulate your cortisol can and do help.
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Avatar universal
trixi; I hate to say this, but you cannot attribute all your symptoms to a disease process.  It sounds to me like you are obsessing over your illness.  Some things you just have to learn to live with, because your body is not perfect.  God gives us the ability to choose how we will treat our bodies;  I think you need a doctor to tell you to what you should do about all the worrying you are doing over things not quite so important as you may think.  Good luck, and I hope you can find the balance you need to live a more productive life.  You are way too young for this kind of worrying about your health.  I am 2 1/2 times your age, and have learned the hard way.  
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2 Comments
Just because you must have issues with hypochondria.... Doesn't mean others too. This person is truly suffering.... Don't tell someone you don't know to dismiss their daily walk with pain.... Unless you have intimate knowledge of this persons life....back off!
Dellafus-
I really hope you find the light of God and He may finally give you the gift of understanding and compassion. It must be frustrating being in the winter of one's life and also being so naive and lacking of God's love. I hope you find a doctor who can help you (and a good pastor for that matter - hell is not going to be fun for you if you're already in agony on earth!)
Avatar universal
Rheumatologist is the only expert in care of Fibromyalgia, CFS, arthritis.  But, because the range of symptoms is all over the place, your rheumatologist will often suggest you have lots of tests, see other specialists such as allergist, orthopedist, physical therapist, nutritionist, etc.  So many bodily functions can go wrong (as you have described, and I have additional ones), and all the different entities should collaborate on your care.  It is difficult to get them all to agree, since each is convinced he/she can be your savior, but it just won't happen that way.  Let your rheumatologist  be the main choice.
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Avatar universal
first of all, a BP of 135/100 is really not high.  The diastolic (the lower number} is a little higher than it should be, but considering all your other problems, do not consider your BP any problem.  The disease you mentioned, you called Reynolds is Reynaud's disease and causes a lot of the hot/cold/pain/swelling/skin-mottling, often pain on walking and using hands.  Smokers also have a higher rate of this disease. due to its effect of decreasing circulation.  
I have several of the conditions you have, and have fluctuating levels of almost all of the things you have named, and some you haven't.  Note, the complaint of dry mouth/hence dry skin/ can be caused by any number of pain meds, antacids, stomach meds/ and is called Sjogrens
disease.  Can be treated with biotene, but still a problem.  
Most importantly, write down your symptoms, when they occur, what you were doing at the time; if you took any meds, did they help?  Talk to your doctor.  You may be a medical mystery to him/her, but the Rheumatologist is your best bet.  They handle more of these conglomerations of illnesses than anybody else.  What is very clear is that you have an autoimmune disease; hard to diagnose and hard to treat; therefore, treat the symptoms, and narrow down the possible specific disease.  That is very hard to do, and takes commitment and perseverance by you and your doc.  Good luck; we all need it!
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Avatar universal
On last thought get checked for candida overgrowth. Good luck and be well.
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Avatar universal
BLACK MOLD test is only done by a specialized doctor look up Dr Shoemaker had trained some doctor in this area most Medical doctor would  have no idea how to check for mycotoxin mycoplasma. We have a science of  enviromental  medicine doctor here so he is well aware of enviromental illness  
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Avatar universal
This are few ideas that I have Consider getting checked for Lyme, though IGENEX labs they are the most accuarate lab . If the test comes back positive find an LLMD that is a Lyme literate  medical doctor they are educated and skilled in this area. Get checked for  Epstein Barr virus , Get your hormones checked, See an infectious Disease doctor. Get an STD check. Get SIBO small intestinal bacterial overgrowth check, it is a blow test.   Also get checked for parasites I read you need to have 10 parasite checks to get 100% accuaracy or just go on a long gentle parasite cleanse. Get your teeth checked, it could be a jaw bone infections or an infected tooth. Or wisdom tooth site is infected.  Do you have root canals? Consider  reading  Root Canal Cover up. Some people end up with CFS due to dental issues, and once the issue is addressed the CFS clears up. Go on food elimination diet, stop all soy,  dairy,  sugar, wheat, corn . As for  gluten it can cause  dizziness, nausea loss of memory  and  make you ;super sick so I would just stop it for a few months to see, the key is to not have gluten for few months .You can look up the diet on the web. Have you been or are you around black mold . Black mold could be hidden in your house, car or work it can make you very sick and they symptoms you mentioned all can caused from Black mold . Find a doctor that is a Diagnotist Expert that is the key when you have something no one can figure out the cause. Also check out the new illness EMS Electro magnetic frequency sensitivity. Now people are getting sick from electomagnetic waves,  caused from lab tops, cell phones, microwaves, WIFi cell phone towers,some people have minor symptoms some people have heart issues and seizures ...so it is serious. I think when you  go away on vacation to a place away from all this stuff you will find out if that is the cause.Maybe camping in the wood take tick repellent with you :) and see if you feel better when your away. You cannot stay in a hotel because they all have wifi, If you like me camping if not your gig ...rent a nice  motor home and stay by the ocean side
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Avatar universal
I didnt know the Brown circle on my eye ball was called a eye freckle. Iv had it for yrs...this is the first I have heard someone else having one. have you gotn any more answers?? my eye dr has said nothing about it ....thx for your comment.
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Avatar universal
I have been searching for yrs bc of all these dang related symptoms that has been on going an the new was deveopling this yr. keep me posted please! I have been to dr's ongoing all test are NEG and I know Im not crazy!! something bad is wrong!!! this is exhausting!! have you found ANYTHING as of what test to be done what teatments to be done etc...??? I have been scared bc I dont no what to think of these inner vibration shakes. this summer I had ALL LUPUS signs an symptoms. keep me posted please!!
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Avatar universal
I thought I was reading my medical history...I have had symptoms for 20 plus yrs ld an new ones the past few yrs. this past yr has def had some major symptoms added. I truly believe we can have more then 1 dx of auto imunne diseases. I  have had b/w done out of the wazoo the past several wks and with all these symp you can not tell me NOTHING is going on an all b/w is NEG!!! huh uh...something is not right. I am almost at the point where I can careless abouta pinpointed dx's but on the other hand I need treatment bc these symptoms are serious. keep us updated on what you find...
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Avatar universal
I have had tumors/masses removed the first one we thought it was a mass of breast cancer the surgeon was shocked that it wasnt it was a mass of calcium! the same surgeoun also found a huge tumor/mass on my back on the spine they werent painful just flat an big masses. he took it off it was a lymphoma fatty tumor. I have stage 3 kidney, food gets stuck in throat alot an so I have to drink alot when I eat. I have had a swollowing test last wk it cam back "with in normal" I hate it....every stinking test I have done has been NORMAL! there is no way something is wrong! i HAVE all OF THE SYMPTOMS ON THIS FORUM been to 3 rhumeys none of them have the same opinion. still all leads to lupus an connective tissue disease. but after reading several of these experiances I am also thinking it could be lyme disease! have had majority of symptoms since I was a kid an Im 50 this yr an getn worse. I am wore out from dr visits an the majprity looking at me an scratching their heads and pawning me off to the next dr...thank god I good ins for now so I am taking avantage of it while I can! I have also lived in the chemical indusrty all my life the x worked in the chemical plant that made PVC for plastics and washed them clothes for 20 yrs.something is NOT right!! I use vit D 2 and 3 mega doses and magnesium. I firmly believe these nutrients are screwing around with my b/w. I am not giving up! thank you all for sharing your journey miserable as it sounds I firmly believe we can help each other and find that one dr who will listen. I also had a gallblladder removes 23 yrs ago and hysterc 15 or so yrs ago.
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Avatar universal
a yr ago my vit D was at "6"....ever since then I have been taking about 12,000iu's a day of D3 and 1 D2 at 50,000 wk, an magnesium and since then even with all flares and symptoms of lupus MCTD  fibro etc....all blood work has been compromised! either at "0" or none detected for all lupus markers...so aggrivating!!! I should have went to the E R when I was in Myrtle beach in aug, I had a flare like I have NEVER had before, red as a beat, eyes were killing me from the light, stiff as a board inflammation was out of the roof! thats when I should have went for b/w!! I will be prepared next summer!!!
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what is CFID?
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I can not believe some one else has a brown spot on the white part of their eye ball. I have had one of these for eons of yrs. my eye dr hasnt said anything about it either. Im not so sure they arent missing something....
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Avatar universal
the lyrica helped me alot! i got off of it bc of the weight gain it caused. 40 pds in 6 months!! can not get it off!!..:)
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Avatar universal
Hi Trixi138, have you been treated for Candidiasis (Intestinal yeast overgrowth)/ Leaky gut syndrome (especially after taking the antibiotics)? That is the root cause of most illnesses, especially autoimmune disease related....... Henry
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Avatar universal
Hi trixi, have you treated for Candidiasis (Intestinal yeast overgrowth)/ Leaky gut syndrome (especially after taking the antibiotics)? That is the root cause of most illnesses, especially autoimmune disease related.......

Henry
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Avatar universal
Hi trixi, have you treated for Candidiasis (Intestinal yeast overgrowth)/ Leaky gut syndrome (especially after taking the antibiotics)? That is the root cause of most illnesses, especially autoimmune disease related.......

Henry
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434278 tn?1324706225
Hi there and welcome to the forum.  You add yourself to the group.  If you have trouble figuring it out, let me know and I'll try to refresh my computer skills to help.
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