help with Lymphocytic hypophysitis headaches?

[DanielleD88]

Does anyone have this?  At first I had Diabetes Insipidus, then no period, now maybe low thyroid...have done 2 rounds of steroids with no shrinkage of inflammation, gained 25 pounds, but now I have headaches for weeks at a time....does anyone have headaches like this, and if so, any recommendations on how to treat?  THANK YOU SO MUCH in advance.
Danielle

[DanielleD88]

Hey there!  Thanks for reaching out.  It is quite a lonely diagnosis.  And frustrating because no one knows much about it.  Although I have suffered, things seem to be getting better now and it seems to be shrinking slowly, on it's own.  I will always regret going on those steroids, though, my body and face have never been the same since.  What is your treatment?  How are you feeling?
Danielle

[Cathya79]

It`s been a while since You posted this. I am a female, 34 years from Europe. I also have this LH, and I must say I feel quite lonely about this. I don`t know much about it and it`s pretty frustrating. How are you these days?