Autoimmune Disorders Community
isaac's sydrome or neuromyotonia
Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

isaac's sydrome or neuromyotonia

Hi All

Been ill for nearly 3 yrs now got vague dx of fibromyalgia but my dr has never agreed with this and had thought MS but all MRI been clear so she thinks a neuromuscular problem i thought from sx maybe MG but been doing some research on neuromuscular disorders and none fit really except MG except i dont get the eye drooping but one does fit and that issac's syndrome it fits the excessive sweating i get the constant all over body spasms or muscle contractions and other sensory sx that i have been dealing with that MG could not explain although i did wonder if i had fibro and MG but now i feel it is this i hope the neuromuscular consultant i am due to see in a few weeks will be able to reach a dx i have started on bacolfen for the spasm i am on fenntanal pain patches as well.

does anyone have this disorder or know more about it and if they do do you how did you get dx and what treatment has worked for them?

thanks
Related Discussions
230948_tn?1235847929
bump
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Autoimmune Disorders Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
Top Autoimmune Answerers
434278_tn?1324709825
Blank
karajo
Spearsville, LA
1530171_tn?1362547225
Blank
TheLightSeeker
London, ON
1756321_tn?1377771734
Blank
Red_Star
Queensland, Australia
8221281_tn?1397574572
Blank
Pantx
Denton, TX
Avatar_f_tn
Blank
nutrinut_bob
1340994_tn?1374197577
Blank
Caryopteris
Raleigh, NC