Aa
A
A
Close
Blank
230948 tn?1235847929
isaac's sydrome or neuromyotonia
Hi All

Been ill for nearly 3 yrs now got vague dx of fibromyalgia but my dr has never agreed with this and had thought MS but all MRI been clear so she thinks a neuromuscular problem i thought from sx maybe MG but been doing some research on neuromuscular disorders and none fit really except MG except i dont get the eye drooping but one does fit and that issac's syndrome it fits the excessive sweating i get the constant all over body spasms or muscle contractions and other sensory sx that i have been dealing with that MG could not explain although i did wonder if i had fibro and MG but now i feel it is this i hope the neuromuscular consultant i am due to see in a few weeks will be able to reach a dx i have started on bacolfen for the spasm i am on fenntanal pain patches as well.

does anyone have this disorder or know more about it and if they do do you how did you get dx and what treatment has worked for them?

thanks
Cancel
2 Answers
2 Answers
Page 1 of 1
230948 tn?1235847929
bump
Comment
Cancel
230948 tn?1235847929
Comment
Comment
Submit Comment
Your Answer
230948 tn?1235847929
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Autoimmune Disorders Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank