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230948 tn?1235847929
isaac's sydrome or neuromyotonia
uk2
Hi All

Been ill for nearly 3 yrs now got vague dx of fibromyalgia but my dr has never agreed with this and had thought MS but all MRI been clear so she thinks a neuromuscular problem i thought from sx maybe MG but been doing some research on neuromuscular disorders and none fit really except MG except i dont get the eye drooping but one does fit and that issac's syndrome it fits the excessive sweating i get the constant all over body spasms or muscle contractions and other sensory sx that i have been dealing with that MG could not explain although i did wonder if i had fibro and MG but now i feel it is this i hope the neuromuscular consultant i am due to see in a few weeks will be able to reach a dx i have started on bacolfen for the spasm i am on fenntanal pain patches as well.

does anyone have this disorder or know more about it and if they do do you how did you get dx and what treatment has worked for them?

thanks
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