I have a "mass", docs think it's pannus, at c1/c2 in my neck...at the base of my skull. During a PETscan, they found over a dozen lung cysts. I had noticed more fatigue, but no shortness of breath until a couple months ago, which has gotten worse just in the last month. The doctors don't know what I have but say it's either LAM or an autoimmune disease, but have no idea which one. All my bloods test for RA, Sjogrens, everything has been negative. Even the lip biopsy for Sjogren's was negative. Does anyone have similar symptoms with a diagnosis? The shortness of breath worries me...but the lung functions tests have been normal so far, besides showing the asthma I have. The doc did put me on Advair, which seems to be helping, but I still have times during the day I have trouble catching my breath.
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