hi anita i see your from england great where abouts are you we are in wolverhampton. please keep in touch, as from what i can see their are very few people from england theyare all in america. treatments are different. look into the antibiotic minocycline check out the road back foundation website , many people have taken minocin an antibiotic and put themselves into remission. claire started taking it in november. check it out see wat u think. good book to read is the proven therapy which can save your life by henry scammell. this all about the bacterial theory of autoimmune disease, i hope u dont suffer like your mother did, how long have u had this? if your anything like claire you will fight against the toxic drugs the docs keep trying to pump into you to mask the symptoms no cure. any way speak soon caroline
I have crest I think, I have raynauds, Scleroderna, (diagnosed) I do not have the ANA and RNA results to hand, I cannot help you with your question as yet but I am studying, the horrible disorder, and would love to keep in touch I have avoided treatment, am about to start vasodilator drugs. I think the worst of my pain is from Erythromalalgia, the intense burning in my hands and feet along with swelling and reddening. My mother suffered from diffuse, I am not sure if I am the same, still being reviewed 6monthly but symptoms have deteriated rapidly.I personally feel in watching my mother and her treatment, that nothing can repair or stop the breakdown of small blood vessels and the influx of thickening collagen. Or indeed the calcification that builds up in the fingers, you just have to be so careful to avoid infection and ulcers.Internal organs can be treated to a degree as they are affected, the swallowing is a bad one, this could not be assisted with my mother, I truly hope for your sister that progression slows down, and internal organs are not affected. I am sorry I do not know prednisalone as yet but I intend to investigate it, nor do I know APMinocin the antibodies in my opinion will never go away but I hope thay may be supressed. I wish your sister my very best and hope you keep in touch. I have only recently joined this site, Good luck.Regards Anita.