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vitamin d

Have any of you heard a creaking noise in your body, felt movement or had movement/and/or strange feelings in your heart before going on the vitamin d therapy?  I was diagnosed with low vitamin d (it was 18) and was told to take the 50000 iu 1per wk for 6 wks but being that i am scared of meds I opted for the 1000 iu per day dosage without a prescription.  I think now I should have listened to the doc and took the larger dosage.  Does anyone have any REAL idea of what the normal level of vitamin d should be for someone over the age of 40?  I don't think 32 as I have previously heard is accurate this day in time.  I read that is an outdated number.  The 1000 iu per day hasn't helped me much.  Will await your comments.....hopefully.  Thank you!!!
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Avatar universal
I'm not supposed to eat any artificial sweetners or perservatives. They are
pro-inflamatory. I'm used to bland foods. I'll look into liquid rice. Are you sure rice doesn't have milk or soy?

Lori
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Avatar universal
What about rice protein?  I am certain there are protein shakes made with rice as well.  Almond milk doesn't taste too bad if you want to use it in place of milk.  I would stick with plain and not flavored unless you want it sweetened.  I think the flavored ones are sweetened.

Debbie
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Avatar universal
I can't take a protein drink becuase either it's soy or milk. I'm not supposed to eat any dairy products.

Lori
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Avatar universal
It sounds like you are on the right track.  Allergies can play havoc with your body.  I know my friend was allergic to most nuts even though she thought it was just one.  You may want to cut out all foods that fit in each category until you cleanse your body and reintroduce them.  Also, you need to take a supplement that helps your body shed the "shells" that candida leave behind once they are gone.  If you doctor doesn't give you one, check out Vitacost.com for candida cleanse products.  Did he give you a protein shake to take during your diet?  He should have.  I have used MediClear but there are other out there.  Maybe post a new message on this board and get some ideas from others.

Lots of luck.

Debbie
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Avatar universal
I went to my allergest last week and he wrote me a script for food allergy tests. I just found out I'm allergic to soy, peanuts and oranges. He gave me a name of a book to get. I think it's called The Yeast Connection. He wants me to read it and go on their diet.

Lori
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Avatar universal
I wouldn't know what to suggest as far as tests.  I haven't had any experience in parathyroid issues.  I had a PTH intact blood test which came out good.  Have you thought about going to a homeopath and getting some guidance on detoxing your system and reintroducing foods to see if you have any allergies?  You may not know that you are allergic to some foods.  I have a friend who recently did that because she was having stomache issues, frequent headaches and trouble sleeping.  It turns out that she has many food allergies caused primarily by candida (yeast overgrowth) in her body.  As soon as she cut out the foods that were identified, she felt better.  Once she completes the detox cleanse she will reintroduce each food to see if she is still allergic.  You may want to see if that gives you relief from any of your symptoms?

Best of luck.

Debbie
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Avatar universal
I took a 24 hr. creatnine test in the spring of last year. The reference result should be between 800-1800. Mine  came out 865. I personally consider this to be low. I kept asking my docs for a repeat of this test and my answer was no. Huh? Finally I got a script to repeat it. Going to lab. I can't take anything else that can help my bones. Not until they figure out what's wrong with me. My labs keep jumping around. It's 1 1/4 yrs. that I've been sick and they still can't figure me out. My bone problem is just one of the problems I'm having.

My docs say my kidneys are functioning okay. But for a year I had a feeling something is wrong with them. If I didn't drink loads of water, I can't seem to urinate much. Confused.

What other tests would you suggest?

Lori
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Avatar universal
I just remembered, there is a medical FOOD called Fosteum for treating osteoporosis.  Essentually, it is Vitamin D, genestein and a form of Zinc.  You may want to check this out first and try it for a year before going the route of those nasty drugs.

Debbie
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Avatar universal
No, actually, just going on the meds without first treating the problem is one of the biggest mistakes people make in dealing with osteoporosis.  The drug companies have everyone convinced they need to take biophosphates when really, not everyone does and they haven't proven to prevent fractures, only to increase bone density by keeping old bone longer than we should.  It gives people a false sense of security when in reality, your density is higher but the bone is not as healthy and alive as it needs to be.

There are a couple reason I am in this situation:  low vitamin D, hyperthyroidism (for years), menopause, birth control pills and excessive Vitamin A intake for an eye condition.  Rather than jump into taking drugs that keep old bone longer than it should be, I am treating these conditions by adding Vitamin D, calcium, magnesium, estradiol and progesterone.  I also take fish oil and Vitamin C.  I no longer take additional Vitamin A other than what is in my multivitamin.  I exercise five to six days a week.  My next Dexa scan is due in July and at that time, my doctor and I will determine what the next step is.  Ironically, my endo has even said that most of the people she treats with Vitamin D end up improving in their bone density.

I would not rush to take a drug.  There are too many side effects including DEAD JAW where your teeth fall out because too much old bone is retained in the jaw bone.  I would rather not lose my teeth too!  I personally know someone who has esophagus problems now from taking Fosamax and is losing her teeth as well.  No thanks!  
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Avatar universal
Dab,

If you have Osteopenia and Osteoporosis you should be on something other than vitamin d and calcium!!!!!!!!!!!!!!!!!  Is there a reason you're not???
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Avatar universal
Lori,

Have you had a 24 hr. creatnine test done?  Alot of times a kidney problem is responsible for PTH problem.  Please let me know if you have had this test!!  Yes, you are exactly right it is a serious problem and that is why they need to get to the bottom of it.  I surely hope you get some much needed answers soon!!!  Keep me posted.
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Avatar universal
Forgot..I also take 100mg of C0-Q10 daily
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Avatar universal
LOL..confusing here.

Debbie: Your input was good.

Mercygracious: Regarding the meds I'm on...sounds crazy but I'm not suppposed to take calcium supplements or eat foods with calcium in it. :(   I have high calcium serum and high parathyroidism. This condition is usually caused by a benign tumor on a parathyroid. When taken out, the problem is solved. This is called primary hyperparathyroidism. I don't have a tumor but have other problems which are most likely autoimmune. Docs say that my hyperarathyroidism is secondary to something else but they don't know what. I was just put on Neuroton for whole body pins and needles. So while I write, I think I'm still losing bone. :(

I take Vit.B6-50mg, 500mg Vit.C, 500mg fish oil 3 times daily, Vit.D-800mg daily. The reason I don't take more D is because the higher my D levels go, it pushes my blood calcium and blood parathyroid numbers up. That's not good. It could be serious. I'm taking another blood test soon.

I've gone to three endo docs already and none of them know what's wrong or how to fix me.

Debbie: I can't take estradiol and progesterone since I'm post menapausal. My doc says it can cause a clot or stroke. JUST turned 58. WOW. But I still like Pink Floyd, etc..
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Avatar universal
Sorry, I read the last post wrong and it was you asking Lori. LOL  Oh well, you got my answer too!

Debbie
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Avatar universal
Were you directing your question to me (Debbie)?  If so, I take calcium, magnesium, vitamin C, B-100 complex, estradiol and progesterone.  All of which help your bone density.  I take a multivitamin with Vitamin K, manganese and boron which also help.  I don't take any meds as all they do is slow down the osteoclast activity and allow old bone to remain longer than it should.  It is better to try supplements and exercise that promote bone growth (osteoblast activity) first.

Debbie
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Avatar universal
What kinds of meds are you all on for your osteoporosis?  You should be taking something other than vitamin d for this!?!?
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Avatar universal
Yes, I had a bone density scan in July 2008 because of al of my thyroid problems.  My doctor wanted to see where I was at but didn't expect it to come out as it did.  I have osteopenia in the spine and osteoporosis in the hips.  It's not severe but at my age, I need to take it seriously.  My Vitamin D levels were 27 (32-100) AFTER already taking on my own, 1000iu daily for six months.  I now take 3000iu daily and one monthly pill of 50000IU.  My last test showed Vitamin D at 47.  I would agree that 800iu a day is not nearly enough!  

Debbie
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Avatar universal
Did you feel better once your levels increased to 24?  It doesn't sound like 800 iu is enough for you right now?
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Avatar universal
How did they determine you had osteoporosis through a bone density scan?  I didn't think they did that till after the age of 50?  I wonder if I can get one as I am in my 40's .
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Avatar universal
I just started noticing creaky joints in June 2008.  I was also vitamin D deficient and thank goodness I got my levels up by September 2008.  I don't have any joint pain at this time and still have a few creaks, but much less.  What positive results did you see?  Arthritis is the last thing I need!  I take calcium, vitamin D, fish oil, flaxseed oil, vitamin C, and magnesium,  I also have osteoporosis and I am 44!  I am hoping to see an improvement in my bone scan this summer.  Being hyper with Grave's surely didn't help. :(

Debbie
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434278 tn?1324706225
I had a low vit D level along with bone pain and creaking.  My joints make a cracklin' sound, but it is because of lupus affecting my joints.  But I did have the muscle pain and fatigue that goes along with that.  It took a while to see any positve results, but I finally did (maybe 2 months).

I'm not sure of optimal level, but I'm shooting toward the high end of normal.  That low D made me feel real yucky.
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Avatar universal
First came the sound of cracking, then came the joint and bone pain. I pleaded with the doctor to give me a nuclear whole body bone scan since I also had found out from my bone density test that I have osteoporis. It really stunned me to hear this. Turns out that the scan showed every joint has arthritis and was told that I must have had this for a long time. I'm in my 50's and I never had my Vit.D checked. I never even thought of it. I have no idea how long I may have had low D. I was 5' 8 1/2" and now I'm 5'6". My spine is curving.



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Avatar universal
how did they determine you had arthritis????? And what are they doing for it????
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Avatar universal
I had cracking of all my joints for several months and learned I have arthritis. My Vit.D was 8.5.  I also have a hystery of heart palpataions. I took 50,000 IU 1x per week for 6 weeks and it got the D up to 24 which is still low. I'm now taking 800 IU each day and am due to check my level again. I have a feeling it's still low.
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