Doc says i have MGUS(blood disorder-rare) similiar to Guillain-Barre syndrome but not that(there was no topic name for mgus) but it is kind of like it and rare and i want to know if anyone knows anything about this crazy disorder they said i have last month??
I was diagnosed with MGUS a couple years ago. I've seen two hematologist/oncologists and both say it's fairly innocuous but needs to be monitored at least annually. (I understand some docs like to run the tests quarterly.) My monoclonal antibody levels have been rising slowly, but are still far below the level that would get someone diagnosed with Multiple Myeloma.
I'm told the only significance is a higher likelihood of developing Multiple Myeloma as I age than someone without MGUS, but still fairly low. The vast majority of people with MGUS never develop MM.
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