Wegener's Granulomatosis
Wegener's granulomatosis is an uncommon disease, in which the blood vessels are inflamed (vasculitis). This inflammation damages important organs of the body by limiting blood flow to those organs and destroying normal tissue.
Although the disease can involve any organ system, Wegener's granulomatosis mainly affects the respiratory tract (sinuses, nose, trachea [windpipe], and lungs) and kidneys. This disorder can affect people at any age and strikes men and women equally. It is rare in African Americans compared with Caucasians.
I hope all goes well..I found this and thought it might help..
KD Lee
Thanks, not sure what kind of doctor that is, but one of my coworkers said the same thing. I'll look it up. they also recommended ENT for the granulomas in his nasal cavities. thanks again
I'm sorry to hear about your son's diagnosis. The only other specialist I can think of that may be able to help your son is a Nephrologist.
Best,
PlateletGal