AUTOIMMUNE DISORDERS EXPERT FORUM
Need Help ASAP!!!

Need Help ASAP!!!

Need help  ASAP!!!
I had originally asked about dermatomyositis on the dermatology form if you want to read my original message there, but I am thinking I might get more help on the auto-immune sight here.I was told by my optometrist that I have an autoimmune disease due to a heliotrope eye rash I have been getting around 5-6 years now, joint, and muscle pain. The only one auto-immune disease I have been told via the internet websites such as this one is that I have Dermatomyositis. Anyhow the hospital gave me a muscle creatine phosphokinase test yesterday and it turned up normal, but they put me on Prednisone and I was taking that, but I could only take it for three days on the count I was so allergic to it. Could this have made a difference in the test or might I have something else that would make my eyelid turn purple just out of the blue??? By the way, since my last writing here, I have had three purple eyelids, severe muscle and joint pain yet. I also read that in RARE cases some peoples blood kinase test do come back normal and they do have DM. I also get a high white blood count and a low grade fever (around 100 degrees) when I get really down and out. I surely hope someone can help me and tell me what might be going on ASAP as I am feeling only worse day by day. I am still seeing a new rheumatologist next friday if the weather will cooperate.
Sincerely,
Sapphira
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Dermatomyositis is thought by many specialists to be caused by viral or bacterial infection(s).  When you have other autoimmune symptoms, such as severe muscle and joint pain, low grade fever and other signs and symptoms, this also reinforces the possibility that one or more chronic infections could be involved in your condition.  You can find more information on the types of chronic infections that could be involved on our website, immed.org.
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