Mainly these are borderline anaerobic cell wall-deficient bacteria that hide inside cells. This is why oxygenation helps (HBOT, ozone therapy, MMS, etc.) to suppress these bacterial forms because they thrive on low oxygen tensions and raising oxygen levels inside cells suppresses them. Highly dilute H2O2 has been used orally, but you have to be careful. We recommend it for oral irrigation, especially when gums are involved.
When it has been used IV (it must be administered in low doses), it sometimes causes severe reactions. Care must be taken with all of these oxygenation procedures. They are best done when the oxygen levels are started low and raised slowly until maximum therapeutic effect is obtained (as usually measured by a decrease in signs/symptoms severity).
In our clinics in Africa where cost is a major factor we use IV H2O2, but only in very low doses. It is started at low concentration and built up very slowly to avoid the severe reactions. Thus I don't recommend it in North America where alternatives are available, but there are many practitioners who use ozone treatment of blood, returning the treated blood back slowly by IV line. Again, strong adverse reactions have been seen in a few patients, so caution must be exercised.
Diet is important. Without going into a long explanation of why certain foods like processed sugars, over-cooked fat and other foods are bad for you if you have any chronic illness, you can read more about diet on our website, www.immed.org, especially in an article published by myself and Dr. Richard Ngwenga, a practitioner in Zimbabwe.
So if I use any oxygenation therapy I do not need to use antibiotics to treat this disease?
I am on Humira. I have bin on other inmunosupresores like Enbrel and others that have lost there effect. Right now my RA Vasculitis and Sjogren's S are not getting worse but are not getting better. If I go off of my inmunosupresores my condition becomes much worse than when I started inmunosupresion treatment. Which leads me to believe that even though I don't feel it I am getting worser.
What I dread the most is every time I get sick ( with the flue or something) I get much worse with my headaches. This heavy pressure and paine in my head.
Can this bacteria pass the blood brain barrier?
Actually oxygen therapy can be used in conjunction with antibiotic therapy or it can be used without antibiotics. Hopefully, you can reduce your dependency on immune suppression drugs. These drugs simply mask your condition by suppressing immune responses that try to destroy invader microbes. Also, the cell wall deficient bacteria pick up normal cell surface antigens, and when they are released from cells they can stimulate autoimmune responses to the normal cell surface antigens that they picked up. They can also do something sneaky--they can synthesize 'mimic' antigens that look similar to normal cell antigens and stimulate autoimmune responses.
Yes, the cell wall deficient bacteria are very adapt at passing through the blood-brain-barrier.
What are the symptoms of these bacteria in the brain? Can they be the cause of the various headaches?
So far proper diet, oxygen therapy and antibiotics are the best way to treat this disease?
But I read that it will get worse before it gets better. Is that true?
The last time I saw on antibiotics (Cipro) for 3 months,(to put it bluntly) I saw in hell.
Do these antibiotics (doxycycline or minocycline) bother the stomach? I have stomach problems
I always suspected that my disease might be the cause of my headaches but I never imagined that some of those other problems are to. Most of my life from 6 to now every Dr tolled me they don't know or some BS.
I’m looking on your site but I can’t seem to find the info on proper diet. Can you help me out?
We recommend that 30 min before taking Abx--you should take orally 50 mg Benadryl (diphenhydramine). This will calm your stomach and bowels. Abx like dox or mino should be taken with a full glass of water and a cracker or two or some bread (ie, a little bit of food) if you haven't eaten recently to avoid esophageal irritation (do not lie down for at least 1 hr after taking Abx). .
Two hours after the Abx you should take several tablets/capsules of a probiotic. Antibiotic use depletes normal gut bacteria and can result in over-growth of less desirable bacteria. To supplement bacteria in the gastrointestinal system live cultures of Lactobacillus acidophilus in capsules or powder are strongly recommended. Mixtures of Lactobacillus acidophillus, L. bifidus, B. bifidum, L. bulgaricus and FOS (fructoologosaccharides) to promote growth of these probiotics in the gut is a good way to replace depleted gut flora with "friendly" bacteria.
Will I lose weight with this treatment of diet, oxygen and Abx?
I’m 5-7 1/2 and weigh 105. I have always bin skinny; it’s very easy for me to loose weight but not to gain it, and I eat 6x a day.
When I was on Cipor, for 120 I went to 100 when I stop taking the Abx.
This treatment sounds like a battle of attrition to me.
You seem to be doing the right things, such as eating 6 times per day. Your food absorption may be an issue, which is why the large doses of probiotics 2 hr after any Abx intake is very important. Your gut flora is very, very important in food processing for intake into your system, and it is here where you might be having problems in failure to maintain weight.
You need to be eating a couple of hrs after taking probiotics until just immediately before you take Abx.
Which oxygen therapy is best or what’s easier to handle ClO2 or H2O2 drops (I pick these because they’re the cheapest I can afford). I don't think I can eat 6x a day wile taking these oxygen drops (because of the waiting period).
This seems like its going to be a complex and strict program if I am going to fight this disease and keep my weight up.
PS: the antibiotics are prescription, right? So I will need the help of my Dr.
Also would I have to get rid of my amalgam filings before I do this treatment?
That depends on what you and your physician decide. Either of these approaches should not be too expensive, but IV therapy can be expensive and has to be done under a physician's care, even if it is executed by a nurse. There is a small chance of infection, and it has to be done correctly.
Most of the Abx listed in our treatment recommendations (see www.immed.org and in particular the second publication in the section titled Treatment Recommendations) require a physician's script. However, you can get some of the recommended Abx from overseas (much less expensive) sources without a physician's script.
After a MAC infection has been treated but still comes back, there are still antibiotic treatment alternatives. Such treatment usually involves a combination of antituberculosis antibiotics. These include the following:
Rifampicin, Rifabutin, Ciprofloxacin, Amikacin, Ethambutol, Streptomycin, Clarithromycin
If her physicians have not tried combinations of any of the above Abx, then some combination alternative could be considered by her physicians. Obviously no one but her physician can determine if this is appropriate or not.
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