What is going on with me?

[deebrown30]

Hi I am a 34 yr old female.  I have been having strange symptoms for several years now.  It started in 2003 with severe vertigo and hives when I get cold.  The hives I can control by staying warm but the vertigo would just come and go.  I learned to live with it and then in April of 2009 my world shattered.  I was shopping when suddenly my legs became very heavy, as if I had sand bags strapped to my ankles.  I also had some sensation loss in both legs.  The next day I had some visual disturbances followed by red eye.  The fatigue was and is incredible.  I was diagnosed with Uveitis in my eye that lasted for about 9 months before finally going away but the doctors have not diagnosed my other problems.  They have tested me for many illnesses including many auto immune problems but I still have no answers.  The vertigo worsened in April and now is everyday.  I never get a break from it and it is hard to function.  My legs are still unable to carry me for any period of time....so I find myself in wheelchairs alot.  My question is....can I have an auto immune problem and all of my tests come back normal?  Maybe they are missing something? Thank you for your help!

[deebrown30]

They don't believe that is the problem. I have bi lateral hearing loss and Menieres seems to only attack one ear from what i hear?  Maybe i am wrong on that....

[butterfliqueen]

Have they mentioned Meniere's disease at all?

[deebrown30]

Thank you so much I will make sure to ask for that!

[Garth L Nicolson, PhD]

Your physician can order the Western blot test for Lyme Borrelia burgdorferi.  You should suggest Igenex Labs for testing.

Also, important co-infections in Lyme are species of:  Mycoplasma, Bartonella, Babesia, Ehrlichia, and a few other infections (in order of prevalence).

[deebrown30]

Can any doctor order the Western Blot test for Lyme?  I have been suspecting Lyme disease for a few months.  When I was 16 and 21 I had Bells Palsy now all of these symptoms years later makes me believe that i have been infected for a long time. Thank you for your help doctor.

[Garth L Nicolson, PhD]

The ELISA for Lyme Borrelia is not very accurate.  I suggest that you consider a Lyme Western blot such as done by Igenex.  Also, you should consider other chronic infections, such as Mycoplasma species, Chlamydia pn., etc.

[Garth L Nicolson, PhD]

Your signs/symptoms actually fit with chronic infection(s), especially the vertigo, visual disturbances and fatigue.  

I suggest that you should consider testing to see if you have chronic infection(s), such as Mycoplasma, Chlamydia, or viruses (see a list on our website under Clinical Testing, immed.org).

[deebrown30]

they did one MRI on me and said it was clear...I also had a spinal tap and they said that was okay too.  The one thing that bothers me is when they did the evoked potentials i did not pass them.  My neurologists was a real butt and I also did not have insurance at the time.  I am thinking that I need to find a new one now that I have health insurance.  They tested me for Lyme but they did not do the western Blot test and I heard that that one is more accurate than the Elise??

[karajo]

Have they checked you fo MS? or lymes?

[deebrown30]

I also should add that I was so weak for 3 months that I was bed ridden and I also get a rash on my arm and in the area of my chest that would be seen if Iwore a V neck shirt?  Any ideas?