Further Update:
Been seeing a physiotherapist at my university, he is also using osteopathic techniques, manipulations to my pelvis and muscle energy techniques. He found a right sacral torsion which tilted backwards, and at first he believed my left SIJ was hypo mobile and right hyper mobile and I had instability problems. He also found I was anteriorly rotated on the right and posterior on the left (however now the opposite has occurred after the manipulations, although it is minor). After the second session of manipulations he reduced my coccyx pain by 90%. However after the fourth session he doesn't feel there is any more he can do to help my sacroiliac joints and that problem is still there, along with a small amount of coccyx pain.
I am in much better alignment; however I am still far from being in proper alignment. I am still doing a lot of stretches and exercises given by my physiotherapist, however I think at the end of the year I will get some prolotherapy. Pulsed RF lesioning is just going to reduce pain if anything and I am after a solution, fix the underlying cause which is my aim, but I will keep that as a last resort option.
Thought I might make an update on my situation:
I am about to begin seeing an osteopath and having a CT scan done in a few months time possibly. I have really bad pelvic malaignment, on standing one side is about an inch higher than the other side. When bending forward my sacroiliac joints don’t move properly on one side. My doctor has mentioned my iliacus, psoas, adductor magnus and gemelli are tight. Had some more steroid introjections into my coccyx but it didn’t work this time, either spot was missed or maybe it is referred pain from elsewhere? I bought this book called the malalignment syndrome and that book basically described my whole body and everything going wrong with it. I am taking higher doses of pain killers daily, they are taking my pain down from a 10 to a 6/7, so at least that is something, however I would prefer to not take them and just get this problem fixed.
I would suggest that you try more advanced physio including aquaphysio or aquatherapy.
You may also benefit from Pulsed RF lesioning to the SI joint area if you have had benefit previously albeit for only a while from the steroid injections.
Dr Prem Pillay
Director of Spine and Pain Services
Neuro Spine and Pain Center
www.spine-neuro.org