Back problem symptoms-burning in lower back, buttocks, burning behind legs while sitting...

[versute1]

I have gone to literally over 14 doctors- orthos,neurolgists, neurosurgeons, general practioners, and none of them has acknowledged my symptoms, but will only look at my MRIs and say, "everything's fine".

I have stopped going because I am so sick of paying them for not doing anything for me.  

My problem is related to my lower back and on one MRI a radiologist actually called it what it was- a slight? herniation of L5-S1 and a central disk "protrusion" in L4-L5.  But the neurologist failed to do his job and find out why when I sit, my perineum burns and I have a burning sensation that goes through my urethra also.  Also, while sitting, the back of my legs start to burn very badly, and sometimes my perianal region also.

Now, why can't a neurologist tell me what is being affected, given that it seems the nerves of my perineum and my bladder nerves are being compressed/irritated?  I am on Lyrica and Cymbalta, but other than weird dreams, the Cymbalta hasn't done much, and the Lyrica might be helping with the burning that I was having in my toes.

I have basically given up hope on doctors and have all my hope in God.  Anyway, just wanted to write to see if someone has any experience with the symptoms, or have seen anyone with what I am describing.  I have to lie down to get relief, but I have lied down with my neck on a pillow for so long that I strained my neck and my fingers and left arm started to tingle.  

Any suggestions anybody?

[Cheddarboxp]

pelvic pain can also cause bladder issues, urgency , etc.

http://www.pelvicpainrehab.com/pelvic-floor-physical-therapy/492/pelvic-pain-trigger-points-explained/

[Cheddarboxp]

hello everyone. this post is pretty old but i used to come onto these forums in search for help. i didnt find any answers through these forums but i went on my own search for help and now i am having the RIGHT drs and RIGHT therapists help me.

I HAD THE SAME BURNING FEELING IN MY BUTTOCKS AND THIGHS WHEN SITTING.

I FOUND A DIAGNOSIS AND PROPER HELP. YOU MIGHT HAVE PELVIC PAIN. GO SEE A UROLOGIST THAT SPECIALIZES IN PELVIC PAIN. AND ALSO FIND A PHYSICAL THERAPIST THAT SPECIALIZES IN PELVIC THERAPY.

http://www.pudendalhope.info/node/63

THAT WEBSITE ABOVE CAN HELP YOU FIND A DR AND PHYSICAL THERAPIST IN THE US/CANADA/AUSTRALIA AND EUROPE.

MEN AND WOMEN BOTH SUFFER FROM THIS PAIN. & ITS STRANGE BUT MANY DRS, INCLUDING MY NEUROLOGIST, PCP, ORTHO AND GYNECOLOGIST AND PHYSIATRIST KEPT TELLING ME ITS NOTHING, ITS ALL IN YOUR HEAD, WE DO NOT KNOW, ITLL GO AWAY IF YOU JUST STOP THINKING ABOUT IT.

DONT LISTEN TO DRS WHO TELL YOU THAT. IF THEY WERE IN OUR SHOES FOR JUST 1 WEEK, THEY PROBABLY COULDNT SURVIVE.

I WAS LIVING IN NY WHEN THIS HAPPENED TO ME AND THERE ARE PLENTY OF GOOD PELVIC DRS AND THERAPISTS IN NYC THAT I COULD HAVE BEEN REFERRED TO BUT NONE OF MY DRS EVEN KNEW ABOUT PELVIC PAIN.. I MENTIONED PIRIFORMIS SYNDROME AND PUDENDAL NEURALGIA EARLY INTO MY PAIN STARTING AND THEY ALL SAID ITS A VERY RARE DIAGNOSIS AND I AM NOT A RUNNER SO ITS NOT POSSIBLE. BUT DONT BELIEVE ANYONE UNTIL YOU GET YOUR ANSWERS. IM NOT SAYING DRS ARE STUPID. WHAT I AM SAYING IS THEY DO NOT KNOW EVERYTHING AND ITS SAD BUT MANY PCPS AND NEUROLOGIST AND EVEN GYNECOLOGISTS ARE NOT AWARE OF PELVIC FLOOR DYSFUNCTION/PAIN.

I SUFFERED FOR 3 YEARS BEFORE GETTING THE RIGHT HELP. I ACTUALLY FOUND MY PHYSICAL THERAPIST ON YELP. I GO TO SARTON PHYSICAL THERAPY IN TUSTIN CA. I LIVE IN SOUTHERN CALIFORNIA. AND FROM THERE, THEY REFERRED A FEMALE UROLOGIST, DR PATRICIA WALLACE IN MISSION VIEJO, CA.

I HAVE BEEN RECEIVING INTERNAL/EXTERNAL MANUAL THERAPY IN MY VAGINAL AREA AS WELL AS MASSAGE AND LASER THERAPY ON MY BACK, BUTTOCKS, ABDOMEN ETC.


IF YOU HAVE A DYSFUNCTION IN YOUR PELVIS, YOU CAN HAVE PAIN IN YOUR ABDOMEN, LEGS, BACK ETC.


I only came back to these forums so someone else can receive the proper care because i was so desperate and depressed and in so much pain and my quality of life was ruined starting from the age of 29. So i came back to let others know to at least see a urologist/pelvic specialist and physical therapist that specializes in pelvic pain and rule out any of these issues:

I have PUDENDAL NERVE PAIN AND PIRIFORMIS SYNDROME.
APPARENTLY THESE SYMPTOMS CAN GO HAND IN HAND WHEN YOU HAVE TIGHT PELVIC FLOOR MUSCLES.

ANYWAYS, I DO SINCERELY PRAY AND HOPE YOU ALL FIND GOOD DRS AND COMPASSIONATE PPL ALONG YOUR JOURNEY.

ANY QUESTIONS YOU MAY HAVE, YOU CAN EMAIL ME @ ***@****; please put pelvic pain on the title so i do not think this is spam.

ONCE AGAIN, IF YOU DONT HAVE TIME TO READ THIS LONG COMMENT :

DIAGNOSIS: PUDENDAL NEURALGIA AND PIRIFORMIS SYNDROME

WHERE TO FIND HELP : http://www.pudendalhope.info/node/63#CA

(PHYSICAL THERAPISTS SPECIALIZING IN PELVIC PAIN)

DRS SPECIALIZING IN PELVIC PAIN: http://www.pudendalhope.info/node/54

[Yolzy]

Could you tell me please why they thought it was a urinary problem? And what was the actual diagnosis? Actual problem? Maybe inbox me on ***@****

[4thstreet]

My chiropractor who does a touch release method has alleviated most of the burning in my feet. However still gave burning in back of thighs & through pelvic area. Hope you find some relief soon.

[britt112188]

i am in the same boat as you i have fought them for several years and now i now have burning in my lower back my email is horses_112188***@**** if you want to chat

[stiff331]

This could be a cervical issue causing this. I am a physician and also have the same issues. Have mild cervical stenosis. my neurologist did not think it is coming from my neck. labs nl Emg nl. Going to speak to 2nd neuro as well as neurosurg