Back problem symptoms-burning in lower back, buttocks, burning behind legs while sitting...

[versute1]

I have gone to literally over 14 doctors- orthos,neurolgists, neurosurgeons, general practioners, and none of them has acknowledged my symptoms, but will only look at my MRIs and say, "everything's fine".

I have stopped going because I am so sick of paying them for not doing anything for me.  

My problem is related to my lower back and on one MRI a radiologist actually called it what it was- a slight? herniation of L5-S1 and a central disk "protrusion" in L4-L5.  But the neurologist failed to do his job and find out why when I sit, my perineum burns and I have a burning sensation that goes through my urethra also.  Also, while sitting, the back of my legs start to burn very badly, and sometimes my perianal region also.

Now, why can't a neurologist tell me what is being affected, given that it seems the nerves of my perineum and my bladder nerves are being compressed/irritated?  I am on Lyrica and Cymbalta, but other than weird dreams, the Cymbalta hasn't done much, and the Lyrica might be helping with the burning that I was having in my toes.

I have basically given up hope on doctors and have all my hope in God.  Anyway, just wanted to write to see if someone has any experience with the symptoms, or have seen anyone with what I am describing.  I have to lie down to get relief, but I have lied down with my neck on a pillow for so long that I strained my neck and my fingers and left arm started to tingle.  

Any suggestions anybody?

[PPNH]

Thank you Paul. I'm sorry to hear that you're still suffering after all these years and three surgeries.  And, that you just turned 50 years old and you're considering a nursing home. Ouch!

Everyday you're swallowing pills in the form of Oxycontin, Lyrica, Baclofen, Valium, Methadone and Nabalone and still there is no relief from your pain suffering and anxiety.

I think you should treat yourself and spend the winter in the tropics.  Celebrate your 50th birthday in style and focus on healing your body.  Bask in the warm sun, swim in the sea and take long walks along the waters edge.  Swimming is an excellent form of exercise that takes the pressure off your joints.

My philosophy on aging is that every year we should have more fun than the last.  

Please Paul, make it happen. You're only half way through your life.

[thestorm1087]

You my friend are so right.I  sustained a back injury 20 yrs ago.I was a body builder,many doctors seing the hyper musculature thought I was just trying to collect money from the workers compensation,at 25 an orthopedic surgeon stated I had the spine of a 70 yr old.Why? I had so much O.A and all my disks were so far degenerated.to make a long story short I live in Canada,we dont pay to see the physicians,or for CTs Mris, and most is all covered I have had 3 back surguries now all paid for and I find myself unable to walk now.Because I am having the same plus severe muscle tone in my butt Quads and hamstrings it is unbearable at times I am on 7x80mg Oxycontin,2 times a day am pm 1200 mg lyrica 80mg baclofen 3 x 10 mg valium 150mg methadone 2mg Nabalone I have permision to smoke medical Marijuana you would think I get pain relief NOT oh ya all meds are paid for to they come to over 4000Dollars a month I am going crazy I just turned 50 and I am considering a nursing home.I am in the proccess of tests maybe its another laminectomy plus my knees sound like a 200 yr old wood floor the creeking because of the arthritis I nee both replaced. I am a man with faith in my GOD as now he is the only hope I have I mfeel for you all back and its related aches and pains are terrible Keep praying people I hope your GOD brings you the relief you all deserve
I will pray for you to we will get threw this keep the faith and bless you all
Paul the hurtin unit

[blondiejim]

I have the same type of burning in my buttocks and thighs when I sit for lengthy periods, for years, so I feel for you as I DO know how uncomfortable it is! It must be hard having to sit so long every day! ... I can tell you what helps me after years of having daily, burning symptoms (and going to doctors who do not know what is causing it which is very frustrating! ) When I know I have to sit for a long time, such as on a trip, I bring a soft pad made of a cut up 'memory foam' topper placed in a pillow case. I switch with sitting on that, and on a book for a while, so the bones at the top of my legs support my weight.  Then after an hour or so I replace it w/ the memory foam and prop my legs up.  We stop often so I can walk around. ALSO the best prescription cream I've ever used is one that has Lidocaine in it. It numbs the pain very well. My neurologist called it into a local apothecary (a pharmacist that mixes meds). The cream also has an anti inflammatory, muscle relaxant and a neuro agent, I think , called Gabapentin. The most effective ingredient, though is the Lidocaine. That's what you need , I believe, and an understanding boss who will let you take frequent walking breaks. Also what helps me is to massage the sore areas. It could be that pressure is decreasing your circulation which results in pain. I have located sore muscles near my rectum. Putting cream there and massaging these muscles have helped (muscles ANYWHERE can cramp  lol ! ) Good luck.

[GUPPY1962]

My neighbor was diagnosed with MS and SSI turned him down several times.   I have heard thru several people that this is common but however if you hire an attorney, they will fight for you and win.  They take their earnings from your back SSI.  SSI will pay you bake pay from the time you applied.  You should not be out any money.  I wish you Good. Luck.  

[oneofsixsisters]

read up on dural ecstasia

[amandaj1209]

hi, i have the same syptoms, i had an accident 14 months ago, and since than i have problem with my low back that shoots down to my left leg with burning sensation and numbness in my foot and toes, and many times my foot and toes got too cold and they turned blue. when i went to see the doctor they did an MRI, and they told me that my luber spine is fine but i have another thing, it is dislocation in the sacrum and the coccyx, but i told them there is something else going on, and the time is going, then my doctor told me that i am imagining the pain and nothing is going on with me, i got mad then i went to another doctor and they found slight disc in L5-S1, and they told me that does cause the symptoms i have, and my left leg locks and i can not bend it. i do not trust doctors they all need money. hopefully you will feel better.