Due to a birth defect in C1 that causes the vertebrae to tap my spinal cord, I have developed a lesion on my dorsal cord. My neurosurgeon is suggesting I have C1 and C2 fused. The only symptoms I am having is a mild constant headache, electrical sensation radiating from my neck down my arms, numbness in my arms and hands, tingling in my feet and constant leg pain. I have experienced temporary paralysis from below my waist for a few minutes. Should I wait for the symptoms to go from mild to severe before considering surgery? I also have RA and mild stenosis.
The first physician I consulted was an Orthopedic surgeon. He diagnosed me with an unstable spine and suggested surgery. I feel more comfortable with a neurosurgeon working on my spine so I had a consult with one who said my condition was stable and said surgery was premature. My current neurosurgeon, third opinion, suggests surgery. Three consultations in twelve months. I wonder what a fourth consult would suggest. OTC meds work well for the pain. I can tolerate the other symptoms.
Hope you are well. My 14 year old daughter has also been diagnosed with an unstable spinal cord. She needs a C1-C2 fusion also. Possibly the halo brace. I'm wondering if you've had your surgery yet and how are you doing now. Thanks
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