HELP!!

iv  had constant lower left back pain and chrest hip pain now for  6 months.had a private xray done which  showed sacro ilitas.this was  done under private health care,i didnt renew my private care so have been going to my local nhs hospital in london..they done blood tests bone scane and mri scans but say they cant find any thing wrong!!  when i show them the report from the private hospital i was seen at they just say.theres nothing wrong!!  they gave me pain killers and discharged me.im not happy with this.to me it felt like they could not find any thing on any  xrays i had or tests so they want me off the waiting list!!!  the pain killers are working for now but i dont think its right to just cover up the bad pain and not find out what is wrong..im left limping  all the time i cant manage stairs and im in pain all the time and i rearly need some help..how come a private hospital finds some thing on a  xray and a  nhs hospital cant!!!  i just dont no where to turn now apart from asking my gp to refeer me to another hospital..would love some advise..adele.***@****

[kittyluv1]

I am sorry to hear of your continued health problems.  It is unfortunate that you are not obtaining any definitive diagnosis for your symptoms.
Sacroilitis is an inflammation of the large bones connecting the sacrum to the pelvis and would not necessarily be obvious on x-ray or MRI.  It can be caused by arthritis or other systemic conditions and is usually treated with a combination of anti-inflammatory medication and physical therapy.  It is a functional problem with the movement of the sacroiliac joints and not related to disc problems of the low back.
Have the doctors given any referral for physical therapy?  There are many assessment tools the therapist can use to determine if the origin of your pain is in the SI joint.
I can not explain the disconnect between the private hospital and the nhs system.
I hope that you can achieve a consultation with a physiotherapist who might provide you with significant methods to achieve pain control.
Post again with an update and any additional questions/concerns you may have.
Best wishes ----

[adele190]

thank  you kitty?  for yr advise....yes the worst thing is  that no one seams to know  what  is  wrong..my mobility is poor..stairs are a struggle..and lifting my left leg some times is hard work,the hospital  im sure just think im putting it on..i had physio   which to be honest hasnt helpt.only the painkillers have helpt me.surly i cant keep taking them  forever....

[kittyluv1]

If the physiotherapist concentrated on providing treatment for a suspected low back problem, it is possible that no assessment of the SI joint was done.  For more detailed information about SI joint dysfunction see www.spine-health.com and search for
"sacroiliac joint dysfunction".
I might not be correct in this possible condition being the source of so much discomfort, but the provocative tests needed to rule out this diagnosis can only help in narrowing the problem down further.  It's worth a try!
Taking pain medication only masks the symptoms and eventually lose their effectiveness.  The nhs should be more proactive in diagnostic testing --- it is better for the patient and much less expensive.
Keep me posted ----

[adele190]

update....i have been paying to see a phsio  because the hns only give u 30 min once a wek.it has been money wel spent.he is  trying to help  my mobility at the moment buy puting lots of long needles into my  back and hip and then puling them out staight away think the treatments caled i.m ....with his hands he can feel probs with my back.he said that the nhs were unfair to discharge me with just painkilers just because  my mri scan came back ok..he thinks i my  have a prob with a disk in my back that is afecting the nerves.,this wunt always show up on a mri scan..he thinks it cud be a leak or spit..his plan is to help me  with my mobility  and to stop me limping put then to refeer me to my gp so that he can then refeer me to a special spine doc at a differant hospital..the phsio guy  said that ther is teast that can be done to check the disks? that i have not had..im hopeing that finaly im geting sum help/.some days  the pain is so so much that i just cry because iv had enoth...thank you for listening  to me moaning!

[adele190]

sorry  ment that the phsio said that a disk prob wun not always show up on a mri scan!