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Has anyone ever heard of a post traumatic syringromylia?  I have been diagnosed with this and there is not very much information out there concerning this...I need some help....

It is chronic pain..
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620923_tn?1335125657
HI...what u r talking about is a syrinx that forms due to an injury...yes ...there are those that have it as a congetinal condition.

U may want to stop by the chiari forum here on MedHelp.....many with syringomyelia also have chiari....and the chiari drs are the best to treat the syrinx.

"selma"
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This is from an injury...there is more info on chiari malformations and birth issues but not for post traumatic due to injury...

"diamonddip"
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620923_tn?1335125657
I understand what u r saying and believe me all conditions related can be frustrating to get the info.

But what I was trying to say is even most injury related syrinx's can be congenital....it isjust that they were not symptomatic until the injury...so it is a possibility and that is y there isn't alot of info on it.Even Chiari can be found after a MVA bcuz the trauma triggers it and now u have to deal with it....

I am speaking with my surgeon about the possibility of him answering questions thru the chiari forum.....not sure when, but we do have several well informed members that may be able to help shed light on ur situation and we r here for support.

and I again extend the invite for u to join us...regardless of how u got it...the symptoms r the same and so is the treatment.

"selma"
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