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My husband just got diagnosed
by leigh1972, Apr 21, 2007 12:00AM
My husband, who is 32 just got diagnosed with spinal lipomatous...we know a little about it, but we can't seem to find anything on the web about it except you have to have surgery in order for any hope of normalicy. can anyone please point us in a direction of a good web-site, or information.
thanks
thanks
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In your words could you tell me what spinal lipomatous is? When I plug that into the search engine I dont get much, but when I did some digging I found other things but with different names. I am wondering if its the same thing or if the symptoms are even related. What I found for spinal lipomatous is that it usually occurs in children under the age of 5. But what I found after doing some digging was that its sort of like a benign fatty lump under the skin and men tend to get them in multipule places on the body. Is that what your husband has? I mean the bump under the skin? and does it cause him any pain? also does he have any dimples or dark patches of skin, or patches of hair on his back? Answers to these questions would help me narrow it down a little bit I think.
If you are still needing help I am avaliable and I dont mind helping. I like a good challenge now and then. Especially on something I have never heard about, just more information to feed my brain...lol. :) Just let me know. Till then take care.
no dark patches, and no hair...we found that also...but does not fit that. we don't know the typical age range for this, but his doctor is leaning towards genetics.
it is very painful...and there is no comfortable position, standing, sitting, walking, riding. needless to say, his life has stopped because of this, there is no relief.
it seems the only hope for normalicy is aggressive surgery.
when we go back to the doctor this week i will post what we found out, maybe that can help.
thanks so much for the help
leigh